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Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months

Author

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  • Yanhong Han
  • Yilan Liu
  • Xuelin Zhang
  • Wilson Tam
  • Jing Mao
  • Violeta Lopez

Abstract

Aims and objectives To describe the family caregivers’ caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months. Background Sociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers’ burden and its determinants. Design This is a prospective longitudinal study. Methods A total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6‐month period at 1–2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies‐Depression. Results Of the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22–80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6‐month period. Determinants of caregiving burden were stroke survivors’ physical dependence, caregivers’ age, caring hours per day, depressive symptoms and social support, which explained 46.8%–55.0% of the total variance (p

Suggested Citation

  • Yanhong Han & Yilan Liu & Xuelin Zhang & Wilson Tam & Jing Mao & Violeta Lopez, 2017. "Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4558-4566, December.
    • Handle: RePEc:wly:jocnur:v:26:y:2017:i:23-24:p:4558-4566
    DOI: 10.1111/jocn.13793
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    References listed on IDEAS

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    1. Yea‐Ing L Shyu & Li‐Min Kuo & Min‐Chi Chen & Sien‐Tsong Chen, 2010. "A clinical trial of an individualised intervention programme for family caregivers of older stroke victims in Taiwan," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(11‐12), pages 1675-1685, June.
    2. Sheung-Tak Cheng & Alfred C. M. Chan, 2006. "Filial Piety and Psychological Well-Being in Well Older Chinese," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 61(5), pages 262-269.
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    1. Yongxia Mei & Beilei Lin & Yingshuang Li & Chunge Ding & Zhenxiang Zhang, 2017. "Validity and reliability of Chinese version of Adult Carer Quality of Life questionnaire (AC-QoL) in family caregivers of stroke survivors," PLOS ONE, Public Library of Science, vol. 12(11), pages 1-14, November.
    2. Doris Y. P. Leung & Helen Y. L. Chan & Patrick K. C. Chiu & Raymond S. K. Lo & Larry L. Y. Lee, 2020. "Source of Social Support and Caregiving Self-Efficacy on Caregiver Burden and Patient’s Quality of Life: A Path Analysis on Patients with Palliative Care Needs and Their Caregivers," IJERPH, MDPI, vol. 17(15), pages 1-12, July.
    3. Muhammad Iqbal Haji Mukhti & Mohd Ismail Ibrahim & Tengku Alina Tengku Ismail & Iliatha Papachristou Nadal & Sureshkumar Kamalakannan & Sanjay Kinra & Kamarul Imran Musa, 2022. "Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study," IJERPH, MDPI, vol. 19(2), pages 1-20, January.
    4. Yongxia Mei & Susan Wilson & Beilei Lin & Yingshuang Li & Zhenxiang Zhang, 2018. "Benefit finding for Chinese family caregivers of community‐dwelling stroke survivors: A cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1419-1428, April.
    5. Nora Hennessy & Kathleen Neenan & Vivienne Brady & Melissa Sullivan & Jessica Eustace-Cooke & Fiona Timmins, 2020. "End of life in acute hospital setting—A systematic review of families' experience of spiritual care," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(7-8), pages 1041-1052, April.

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