IDEAS home Printed from https://ideas.repec.org/a/sae/socpsy/v55y2009i5p425-441.html
   My bibliography  Save this article

Development and Validation of a Self-Reported Questionnaire On Users’ Opinions About Schizophrenia: a Participatory Research

Author

Listed:
  • Lorenza Magliano

    (Department of Psychiatry, University of Naples SUN, Naples, lorenza.magliano@unina2)

  • Andrea Fiorillo

    (Department of Psychiatry, University of Naples SUN, Naples)

  • Heidegret Del Vecchio

    (Department of Psychiatry, University of Naples SUN, Naples)

  • Claudio Malangone

    (Mental Health Centre of Ravello)

  • Corrado De Rosa

    (Mental Health Centre of Battipaglia)

  • Carla Bachelet

    (Mental Health Centre of Turin)

  • Giampiero Cesari

    (Mental Health Centre of Arezzo)

  • Rosa D'Ambrogio

    (Mental Health Centre of Rho)

  • Francesca Fulgosi Cigala

    (Mental Health Centre of Ferrara)

  • Franco Veltro

    (Mental Health Centre of Campobasso)

  • Paola Zanus

    (Mental Health Centre of Trieste)

  • Rosaria Pioli

    (Mental Health Centre of Fatebenefratelli Institute of Brescia)

  • Mario Maj

    (Department of Psychiatry, University of Naples SUN, Naples)

Abstract

Background: Although users’ involvement in mental health research has repeatedly been acknowledged as having a positive influence on research quality, this rarely happens. Aims: To develop and validate a Questionnaire on Users’ Opinions (QOU) about schizophrenia, in close collaboration with 279 persons affected by this disorder. Methods: A preliminary list of items concerning the opinions of users with schizophrenia regarding causes, treatments and psychosocial consequences of the disorder was developed by 38 users with schizophrenia and 40 professionals who attended a workshop. Psychometric properties of the QOU were tested on 241 users with schizophrenia, 149 of whom were randomly assigned to a test—retest study and 92 to a face-validity study. Content and construct validity were explored in the whole sample. Results: The final version of the QOU contains: (1) 24 items on the psychosocial consequences of schizophrenia, grouped into six subscales, whose Cronbach’s alpha ranged between 0.55 and 0.74; (2) five multiple choice items on the Italian psychiatric law; (3) 12 open questions; and (4) four yes/no skipping items. Items’ reliability, measured by Cohen’s kappa coefficient, ranged between 0.55 and 0.92. Conclusion: This questionnaire may be useful to assess patients’ beliefs about schizophrenia and to target psychosocial interventions for this mental disorder.

Suggested Citation

  • Lorenza Magliano & Andrea Fiorillo & Heidegret Del Vecchio & Claudio Malangone & Corrado De Rosa & Carla Bachelet & Giampiero Cesari & Rosa D'Ambrogio & Francesca Fulgosi Cigala & Franco Veltro & Paol, 2009. "Development and Validation of a Self-Reported Questionnaire On Users’ Opinions About Schizophrenia: a Participatory Research," International Journal of Social Psychiatry, , vol. 55(5), pages 425-441, September.
    • Handle: RePEc:sae:socpsy:v:55:y:2009:i:5:p:425-441
    DOI: 10.1177/0020764008099414
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/0020764008099414
    Download Restriction: no
    File URL: https://libkey.io/10.1177/0020764008099414?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Schulze, Beate & Angermeyer, Matthias C., 2003. "Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals," Social Science & Medicine, Elsevier, vol. 56(2), pages 299-312, January.
    2. Rutter, Deborah & Manley, Catherine & Weaver, Tim & Crawford, Mike J. & Fulop, Naomi, 2004. "Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London," Social Science & Medicine, Elsevier, vol. 58(10), pages 1973-1984, May.
    3. Link, B.G. & Phelan, J.C. & Bresnahan, M. & Stueve, A. & Pescosolido, B.A., 1999. "Public conceptions of mental illness: Labels, causes, dangerousness, and social distance," American Journal of Public Health, American Public Health Association, vol. 89(9), pages 1328-1333.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Bonnington, Oliver & Rose, Diana, 2014. "Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder: A critical realist analysis," Social Science & Medicine, Elsevier, vol. 123(C), pages 7-17.
    2. Jacobs, Susan & Quinn, Joseph, 2022. "Cultural reproduction of mental illness stigma and stereotypes," Social Science & Medicine, Elsevier, vol. 292(C).
    3. Whitley, Rob & Denise Campbell, Rosalyn, 2014. "Stigma, agency and recovery amongst people with severe mental illness," Social Science & Medicine, Elsevier, vol. 107(C), pages 1-8.
    4. Matthias C. Angermeyer & Michael Beck & Sandra Dietrich & Anita Holzinger, 2004. "The Stigma of Mental Illness: Patients’ Anticipations and Experiences," International Journal of Social Psychiatry, , vol. 50(2), pages 153-162, June.
    5. Erdinç Kalayci & İmran Uzunaslan & Şerif Uzunaslan, 2023. "Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry," International Journal of Social Psychiatry, , vol. 69(3), pages 543-550, May.
    6. Omar Hegazi & Samer Alalalmeh & Ahmad Alfaresi & Soheil Dashtinezhad & Ahmed Bahada & Moyad Shahwan & Ammar Abdulrahman Jairoun & Tesleem K. Babalola & Haya Yasin, 2022. "Development, Validation, and Utilization of a Social Media Use and Mental Health Questionnaire among Middle Eastern and Western Adults: A Pilot Study from the UAE," IJERPH, MDPI, vol. 19(23), pages 1-18, November.
    7. Wright, Annemarie & Jorm, Anthony F. & Mackinnon, Andrew J., 2011. "Labeling of mental disorders and stigma in young people," Social Science & Medicine, Elsevier, vol. 73(4), pages 498-506, August.
    8. Kathy Knox & Jasmina Fejzic & Amary Mey & Jane L Fowler & Fiona Kelly & Denise McConnell & Laetitia Hattingh & Amanda J Wheeler, 2014. "Mental health consumer and caregiver perceptions of stigma in Australian community pharmacies," International Journal of Social Psychiatry, , vol. 60(6), pages 533-543, September.
    9. Ben Butlin & Keith Laws & Rebecca Read & Matthew D Broome & Shivani Sharma, 2019. "Concepts of mental disorders in the United Kingdom: Similarities and differences between the lay public and psychiatrists," International Journal of Social Psychiatry, , vol. 65(6), pages 507-514, September.
    10. Yang, Lawrence H. & Purdie-Vaughns, Valerie & Kotabe, Hiroki & Link, Bruce G. & Saw, Anne & Wong, Gloria & Phelan, Jo C., 2013. "Culture, threat, and mental illness stigma: Identifying culture-specific threat among Chinese-American groups," Social Science & Medicine, Elsevier, vol. 88(C), pages 56-67.
    11. Ahmed El Missiry & Marwa Abd El Meguid & Ahmed Abourayah & Marwa El Missiry & Mohamed Hossam & Hussien Elkholy & Afaf H Khalil, 2019. "Rates and profile of victimization in a sample of Egyptian patients with major mental illness," International Journal of Social Psychiatry, , vol. 65(3), pages 183-193, May.
    12. Kvaale, Erlend P. & Gottdiener, William H. & Haslam, Nick, 2013. "Biogenetic explanations and stigma: A meta-analytic review of associations among laypeople," Social Science & Medicine, Elsevier, vol. 96(C), pages 95-103.
    13. Carpiano, Richard M. & Fitz, Nicholas S., 2017. "Public attitudes toward child undervaccination: A randomized experiment on evaluations, stigmatizing orientations, and support for policies," Social Science & Medicine, Elsevier, vol. 185(C), pages 127-136.
    14. Diana Rose & Pete Fleischmann & Peter Schofield, 2010. "Perceptions of User Involvement: a User-Led Study," International Journal of Social Psychiatry, , vol. 56(4), pages 389-401, July.
    15. Lotte Groth Jensen & Stina Lou & Jørgen Aagaard & Ulla Væggemose, 2017. "Community families: A qualitative study of families who volunteer to support persons with severe mental illness," International Journal of Social Psychiatry, , vol. 63(1), pages 33-39, February.
    16. Carlos Arturo Cassiani-Miranda & Adalberto Campo-Arias & Andrés Felipe Tirado-Otálvaro & Luz Adriana Botero-Tobón & Luz Dary Upegui-Arango & María Soledad Rodríguez-Verdugo & María Elena Botero-, 2021. "Stigmatisation associated with COVID-19 in the general Colombian population," International Journal of Social Psychiatry, , vol. 67(6), pages 728-736, September.
    17. Dobransky, Kerry, 2009. "The good, the bad, and the severely mentally ill: Official and informal labels as organizational resources in community mental health services," Social Science & Medicine, Elsevier, vol. 69(5), pages 722-728, September.
    18. Trude Andreassen & Adriana Melnic & Rejane Figueiredo & Kåre Moen & Ofelia Şuteu & Florian Nicula & Giske Ursin & Elisabete Weiderpass, 2018. "Attendance to cervical cancer screening among Roma and non-Roma women living in North-Western region of Romania," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 63(5), pages 609-619, June.
    19. Noor Ahmed Giasuddin & Itzhak Levav & Gilad Gal, 2015. "Mental health stigma and attitudes to psychiatry among Bangladeshi medical students," International Journal of Social Psychiatry, , vol. 61(2), pages 137-147, March.
    20. Martin, Graham P., 2008. "Representativeness, legitimacy and power in public involvement in health-service management," Social Science & Medicine, Elsevier, vol. 67(11), pages 1757-1765, December.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:socpsy:v:55:y:2009:i:5:p:425-441. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.