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A Needs Assessment Approach for Adolescent and Young Adult Sexual and Gender Diverse Cancer Survivors

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Listed:
  • Lauren V. Ghazal

    (School of Nursing, University of Rochester, Rochester, NY 14642, USA
    Wilmot Cancer Institute, Rochester, NY 14642, USA)

  • Hailey Johnston

    (Escape, Lansing, MI 48915, USA
    School of Public Health, University of Michigan, Ann Arbor, MI 48109, USA)

  • Elisabeth Dodd

    (Escape, Lansing, MI 48915, USA)

  • Yasmine Ramachandra

    (Escape, Lansing, MI 48915, USA)

  • Nicholas Giallourakis

    (Elephants and Tea, Avon Lake, OH 44012, USA)

  • Kayla Fulginiti

    (Elephants and Tea, Avon Lake, OH 44012, USA)

  • Charles Kamen

    (Wilmot Cancer Institute, Rochester, NY 14642, USA
    Department of Surgery, Cancer Control, University of Rochester Medical Center, Rochester, NY 14642, USA)

Abstract

Sexual and gender diverse (SGD) adolescent and young adult (AYA) cancer survivors are an increasing and vulnerable group with unique needs that often remain unmet in the healthcare system. This paper describes the conceptualization and development of a community-based organization dedicated to serving SGD AYAs, in addition to reporting on the results of a community-led needs assessment. A total of 56 SGD AYA community members completed the online survey. Most participants were between the ages of 26 to 33, identified as white, cisgender, bisexual women, and had hematologic malignancies. Identified unmet needs of SGD AYAs included the following: sexual health and family planning; gender affirmation; financial stability; and emotional support. Areas within the community organization were identified as gaps, areas of expansion, and assets. Results highlight the role of community and academic partnerships in improving cancer care delivery for SGD AYA cancer survivors.

Suggested Citation

  • Lauren V. Ghazal & Hailey Johnston & Elisabeth Dodd & Yasmine Ramachandra & Nicholas Giallourakis & Kayla Fulginiti & Charles Kamen, 2024. "A Needs Assessment Approach for Adolescent and Young Adult Sexual and Gender Diverse Cancer Survivors," IJERPH, MDPI, vol. 21(4), pages 1-14, March.
    • Handle: RePEc:gam:jijerp:v:21:y:2024:i:4:p:424-:d:1367473
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    References listed on IDEAS

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    1. Nina Jackson Levin & Shanna K. Kattari & Emily K. Piellusch & Erica Watson, 2020. "“We Just Take Care of Each Other”: Navigating ‘Chosen Family’ in the Context of Health, Illness, and the Mutual Provision of Care amongst Queer and Transgender Young Adults," IJERPH, MDPI, vol. 17(19), pages 1-20, October.
    2. Scarinci, Isabel C. & Johnson, Rhoda E. & Hardy, Claudia & Marron, John & Partridge, Edward E., 2009. "Planning and implementation of a participatory evaluation strategy: A viable approach in the evaluation of community-based participatory programs addressing cancer disparities," Evaluation and Program Planning, Elsevier, vol. 32(3), pages 221-228, August.
    3. Christabel K Cheung, 2018. "Young Cancer Patients as Future Leaders in the Global Knowledge Economy," Cancer Therapy & Oncology International Journal, Juniper Publishers Inc., vol. 10(4), pages 68-71, May.
    Full references (including those not matched with items on IDEAS)

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