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Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia

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  • Jian-An Su

    (Department of Psychiatry, Chang Gung Medical Foundation, Chiayi Chang Gung Memorial Hospital, Chiayi 613044, Taiwan
    School of Medicine, Chang Gung University, Taoyuan 33302, Taiwan
    Department of Nursing, Chang Gung Institute of Technology, Taoyuan 33303, Taiwan)

  • Chih-Cheng Chang

    (Department of Psychiatry, Chi Mei Medical Center, Tainan 70246, Taiwan
    Department of Health Psychology, Chang Jung Christian University, Tainan 71101, Taiwan)

Abstract

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.

Suggested Citation

  • Jian-An Su & Chih-Cheng Chang, 2020. "Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia," IJERPH, MDPI, vol. 17(8), pages 1-10, April.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:8:p:2772-:d:346784
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    References listed on IDEAS

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    1. Moses, Tally, 2014. "Determinants of mental illness stigma for adolescents discharged from psychiatric hospitalization," Social Science & Medicine, Elsevier, vol. 109(C), pages 26-34.
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    Cited by:

    1. Claudia Carmassi & Claudia Foghi & Valerio Dell’Oste & Carlo Antonio Bertelloni & Andrea Fiorillo & Liliana Dell’Osso, 2020. "Risk and Protective Factors for PTSD in Caregivers of Adult Patients with Severe Medical Illnesses: A Systematic Review," IJERPH, MDPI, vol. 17(16), pages 1-17, August.
    2. Anna Messina & Rebecca Amati & Emiliano Albanese & Maddalena Fiordelli, 2022. "Help-Seeking in Informal Family Caregivers of People with Dementia: A Qualitative Study with iSupport as a Case in Point," IJERPH, MDPI, vol. 19(12), pages 1-18, June.
    3. Chung-Ying Lin & Hector W. H. Tsang, 2020. "Stigma, Health and Well-Being," IJERPH, MDPI, vol. 17(20), pages 1-12, October.

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