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Pilot Testing of a Patient Decision Aid for Adolescents with Severe Obesity in US Pediatric Weight Management Programs within the COMPASS Network

Author

Listed:
  • Jaime Moore

    (Department of Pediatrics, Section of Nutrition, University of Colorado School of Medicine, Aurora, CO 80045, USA)

  • Matthew Haemer

    (Department of Pediatrics, Section of Nutrition, University of Colorado School of Medicine, Aurora, CO 80045, USA)

  • Nazrat Mirza

    (Children’s National Medical Center, Washington, DC 20010, USA)

  • Ying Z Weatherall

    (Department of Surgery, University of Tennessee Health Science Center, Memphis, TN 38103, USA)

  • Joan Han

    (Department of Pediatrics, University of Tennessee Health Science Center, Memphis, TN 38103, USA
    Department of Physiology, University of Tennessee Health Science Center, Memphis, TN 38103, USA
    Children’s Foundation Research Institute, Le Bonheur Children’s Hospital, Memphis, TN 38103, USA)

  • Caren Mangarelli

    (Duke Children’s Healthy Lifestyles Program, Durham, NC 27705, USA)

  • Mary Jane Hawkins

    (Children’s Hospital & Medical Center, Omaha, NE 68114, USA)

  • Stavra Xanthakos

    (Division of Pediatric Gastroenterology, Hepatology and Nutrition, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45267, USA
    Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH 45267, USA)

  • Robert Siegel

    (Heart Institute, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45267, USA
    Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH 45267, USA)

Abstract

Shared decision-making (SDM) is a best practice for delivering high-quality, patient-centered care when there are multiple options from which to choose. A patient decision aid (PDA) to promote SDM for the treatment of adolescent severe obesity was piloted among 12–17-year-olds ( n = 31) from six pediatric weight management programs within the Childhood Obesity Multi Program Analysis and Study System (COMPASS). Medical providers used a brochure that described indications, risks, and benefits of intensive lifestyle management alone versus bariatric surgery plus lifestyle. Immediately after, patients/families completed a survey. Patient/family perceptions of provider effort to promote understanding of health issues, to listen to what mattered most to them, and to include what mattered most to them in choosing next steps averaged 8.6, 8.8, and 8.7, respectively (0 = no effort, 9 = every effort). Nearly all (96%) reported knowing the risks/benefits of each treatment option and feeling clear about which risks/benefits mattered most to them. Most (93%) reported having enough support/advice to make a choice, and 89% felt sure about what the best choice was. Providers largely found the PDA to be feasible and acceptable. This pilot will guide a more rigorous study to determine the PDA’s effectiveness to support decision-making for adolescent severe obesity treatment.

Suggested Citation

  • Jaime Moore & Matthew Haemer & Nazrat Mirza & Ying Z Weatherall & Joan Han & Caren Mangarelli & Mary Jane Hawkins & Stavra Xanthakos & Robert Siegel, 2019. "Pilot Testing of a Patient Decision Aid for Adolescents with Severe Obesity in US Pediatric Weight Management Programs within the COMPASS Network," IJERPH, MDPI, vol. 16(10), pages 1-12, May.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:10:p:1776-:d:232634
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    References listed on IDEAS

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    1. Charles, Cathy & Gafni, Amiram & Whelan, Tim, 1999. "Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model," Social Science & Medicine, Elsevier, vol. 49(5), pages 651-661, September.
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    Cited by:

    1. Valentina Martinelli & Simran Singh & Pierluigi Politi & Riccardo Caccialanza & Andrea Peri & Andrea Pietrabissa & Matteo Chiappedi, 2023. "Ethics of Bariatric Surgery in Adolescence and Its Implications for Clinical Practice," IJERPH, MDPI, vol. 20(2), pages 1-11, January.
    2. Robert Siegel & Meghan E. McGrady & Linda Dynan & Roohi Kharofa & Kristin Stackpole & Paula Casson & Francesca Siegel & Nadine A. Kasparian, 2022. "Effects of Loss and Gain Incentives on Adherence in Pediatric Weight Management: Preliminary Studies and Economic Evaluation of a Theoretical Trial," IJERPH, MDPI, vol. 20(1), pages 1-14, December.

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