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On the Road to HIV/AIDS Competence in the Household: Building a Health-Enabling Environment for People Living with HIV/AIDS

Author

Listed:
  • Caroline Masquillier

    (Research Centre for Longitudinal and Life Course Studies (CELLO), University of Antwerp, Sint-Jacobstraat 2, Antwerp 2000, Belgium)

  • Edwin Wouters

    (Research Centre for Longitudinal and Life Course Studies (CELLO), University of Antwerp, Sint-Jacobstraat 2, Antwerp 2000, Belgium
    Centre for Health Systems Research and Development, University of the Free State, 205 Nelson Mandela Drive, Park West, Bloemfontein 9300, South Africa)

  • Dimitri Mortelmans

    (Research Centre for Longitudinal and Life Course Studies (CELLO), University of Antwerp, Sint-Jacobstraat 2, Antwerp 2000, Belgium)

  • Brian Van Wyk

    (School of Public Health, University of the Western Cape, Robert Sobukwe Road, Bellville 7535, South Africa)

Abstract

When aiming to provide chronic disease care within the context of human resource shortages, we should not only consider the responsibility of the individual person living with HIV/AIDS (PLWHA) but also the capacity of the social environment to actively encourage a lifestyle that fosters health. In this social environment, extensive efforts are thus required to increase HIV/AIDS knowledge, reduce stigma, stimulate HIV testing, improve health care-seeking behavior, and encourage safe sexual practices—described in the literature as the need for AIDS competence. In accordance with socio-ecological theory, one cannot restrict the research focus to communities, as AIDS competence studies should also incorporate the intermediate household level. In responding to this research need, the aim of this article is to conceptualize an “HIV/AIDS competent household” based on qualitative interviews and focus group discussions conducted in a township on the outskirts of Cape Town, South Africa. Our results show that a household’s supportive response to disclosure allows a patient to live openly as HIV positive in the household concerned. This may mark the start of the road to HIV/AIDS competence in the household, meaning the PLWHA receives sustainable support throughout the care continuum and positive living becomes the norm for the PLWHA and his or her household. A feedback loop might also be created in which other household members are encouraged to be tested and to disclose their status, which is an important step towards a sustainable response to HIV/AIDS-related challenges. Despite the fact that this road to HIV/AIDS competence at the household level is fragile and prone to various barriers, this article shows that the household has the potential to be a health-enabling environment for PLWHA.

Suggested Citation

  • Caroline Masquillier & Edwin Wouters & Dimitri Mortelmans & Brian Van Wyk, 2015. "On the Road to HIV/AIDS Competence in the Household: Building a Health-Enabling Environment for People Living with HIV/AIDS," IJERPH, MDPI, vol. 12(3), pages 1-29, March.
    • Handle: RePEc:gam:jijerp:v:12:y:2015:i:3:p:3264-3292:d:46971
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    References listed on IDEAS

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    Cited by:

    1. Linda Campbell & Caroline Masquillier & Estrelle Thunnissen & Esther Ariyo & Hanani Tabana & Neo Sematlane & Anton Delport & Lorraine Tanyaradzwa Dube & Lucia Knight & Tair Kasztan Flechner & Edwin Wo, 2020. "Social and Structural Determinants of Household Support for ART Adherence in Low- and Middle-Income Countries: A Systematic Review," IJERPH, MDPI, vol. 17(11), pages 1-28, May.
    2. Lucia Knight & Enid Schatz, 2022. "Social Support for Improved ART Adherence and Retention in Care among Older People Living with HIV in Urban South Africa: A Complex Balance between Disclosure and Stigma," IJERPH, MDPI, vol. 19(18), pages 1-16, September.

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