IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v67y2008i5p834-843.html
   My bibliography  Save this article

Caring for independent lives: Geographies of caring for young adults with intellectual disabilities

Author

Listed:
  • Power, Andrew

Abstract

This paper engages with the emerging disciplinary clash between 'care' and 'independence' within disability studies by examining the geography of home care for young adults with intellectual disabilities. The care system as a whole is viewed as central to disablist structures within disability studies (see Thomas, C. (2007). Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. Hampshire: Palgrave Macmillan.). However, despite the theorisation of dependency as being in antipathy to the goals of the disability movement, caregiving at home still continues to dominate community care. The paper attempts to address how family carers are 'caught-in-the-middle' between their 'duty' to care and at the same time, perpetuating dependency; the reality being that parents have to deal with issues of being overprotective and confronting various social assumptions about disability. It examines the narratives from 25 family caregivers in Ireland who provide personal assistance to young adults with intellectual disabilities.

Suggested Citation

  • Power, Andrew, 2008. "Caring for independent lives: Geographies of caring for young adults with intellectual disabilities," Social Science & Medicine, Elsevier, vol. 67(5), pages 834-843, September.
    • Handle: RePEc:eee:socmed:v:67:y:2008:i:5:p:834-843
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277-9536(08)00275-X
    Download Restriction: Full text for ScienceDirect subscribers only
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Wiles, Janine, 2003. "Daily geographies of caregivers: mobility, routine, scale," Social Science & Medicine, Elsevier, vol. 57(7), pages 1307-1325, October.
    2. Marian Hawkesworth, 2001. "Disabling Spatialities and the Regulation of a Visible Secret," Urban Studies, Urban Studies Journal Limited, vol. 38(2), pages 299-318, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Song, Jieun & Mailick, Marsha R. & Greenberg, Jan S., 2018. "Health of parents of individuals with developmental disorders or mental health problems: Impacts of stigma," Social Science & Medicine, Elsevier, vol. 217(C), pages 152-158.
    2. Robinson, Sally & Graham, Anne, 2019. "Promoting the safety of children and young people with intellectual disability: Perspectives and actions of families and professionals," Children and Youth Services Review, Elsevier, vol. 104(C), pages 1-1.
    3. Moore, Helen & Gillespie, Alex, 2014. "The caregiving bind: Concealing the demands of informal care can undermine the caregiving identity," Social Science & Medicine, Elsevier, vol. 116(C), pages 102-109.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Rishworth, Andrea & Elliott, Susan J., 2019. "Global environmental change in an aging world: The role of space, place and scale," Social Science & Medicine, Elsevier, vol. 227(C), pages 128-136.
    2. Leane, Máire, 2019. "Siblings caring for siblings with Intellectual Disabilities: Naming and negotiating emotional tensions," Social Science & Medicine, Elsevier, vol. 230(C), pages 264-270.
    3. van Exel, Job & de Graaf, Gjalt & Brouwer, Werner, 2008. "Give me a break!: Informal caregiver attitudes towards respite care," Health Policy, Elsevier, vol. 88(1), pages 73-87, October.
    4. Skinner, Mark W. & Yantzi, Nicole M. & Rosenberg, Mark W., 2009. "Neither rain nor hail nor sleet nor snow: Provider perspectives on the challenges of weather for home and community care," Social Science & Medicine, Elsevier, vol. 68(4), pages 682-688, February.
    5. Osborne, Tess & Lowe, Thomas A. & Meijering, Louise, 2023. "Care and rhythmanalysis: Using metastability to understand the routines of dementia care," Social Science & Medicine, Elsevier, vol. 331(C).
    6. Daley, Tamara C. & Weisner, Thomas & Singhal, Nidhi, 2014. "Adults with autism in India: A mixed-method approach to make meaning of daily routines," Social Science & Medicine, Elsevier, vol. 116(C), pages 142-149.
    7. Wood, Victoria J. & Curtis, Sarah E. & Gesler, Wil & Spencer, Ian H. & Close, Helen J. & Mason, James & Reilly, Joe G., 2013. "Creating ‘therapeutic landscapes’ for mental health carers in inpatient settings: A dynamic perspective on permeability and inclusivity," Social Science & Medicine, Elsevier, vol. 91(C), pages 122-129.
    8. Phillippa Carnemolla, 2022. "Apartment Living and Community Care: Experiences of People With Intellectual Disability, Their Families, and Support Staff," Urban Planning, Cogitatio Press, vol. 7(4), pages 398-408.
    9. Andrews, Gavin J. & Cutchin, Malcolm & McCracken, Kevin & Phillips, David R. & Wiles, Janine, 2007. "Geographical Gerontology: The constitution of a discipline," Social Science & Medicine, Elsevier, vol. 65(1), pages 151-168, July.
    10. Shi Yin Chee & Toney K. Thomas, 2022. "Exploring the Normality of the Complexities of Later Life in Aged Homes: A Review," Millennial Asia, , vol. 13(1), pages 173-189, April.
    11. Hubers, Christa & Lyons, Glenn, 2013. "New technologies for the old: Potential implications of living in later life for travel demand," Transport Policy, Elsevier, vol. 30(C), pages 220-228.
    12. Exel, Job van & Graaf, Gjalt de & Brouwer, Werner, 2007. "Care for a break? An investigation of informal caregivers' attitudes toward respite care using Q-methodology," Health Policy, Elsevier, vol. 83(2-3), pages 332-342, October.
    13. van Exel, Job & Moree, Marjolein & Koopmanschap, Marc & Goedheijt, Trudy Schreuder & Brouwer, Werner, 2006. "Respite care--An explorative study of demand and use in Dutch informal caregivers," Health Policy, Elsevier, vol. 78(2-3), pages 194-208, October.
    14. Lowe, Thomas A. & Meijering, Louise & de Haas, Billie, 2023. "The role of performativity in informal dementia carers' capability to be mobile," Social Science & Medicine, Elsevier, vol. 329(C).

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:67:y:2008:i:5:p:834-843. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.