IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v67y2008i11p1641-1649.html
   My bibliography  Save this article

Early accounts of Gulf War illness and the construction of narratives in UK service personnel

Author

Listed:
  • Cohn, Simon
  • Dyson, Clare
  • Wessely, S.

Abstract

"Gulf War Syndrome" has become firmly established in public and political discourse, and considerable numbers of veterans of the 1991 Gulf war now see it as part of their identity. In this paper we draw on open-ended questionnaire data drawn from a large, random sample of UK Gulf veterans, collected in 1996 and 1997. Whilst there is already some literature focussing on coherent personal narratives of some veterans and campaigners, we suggest that they are preceded by much more fragmentary, shared accounts. We take the idea of rumour as a way of encapsulating how these partial ideas swiftly gained value by reflecting and reproducing social ties. Accounts describing fears about this mystery condition simultaneously made reference to concerns about their role as a soldier, about the purpose of the conflict, and rising mistrust of their commanders. As doubt over soldiers' function increased, informal social networks became increasingly significant, perhaps also linked to an erosion of respect for formal military hierarchy. At the same time, rumours of "Gulf War Syndrome" began to circulate, reinforcing the idea that the cause was elusive, and invisible, whilst undermining both the unity of the military force and the individual soldier's body. We suggest that the nature of Gulf War Syndrome as a topic of contestation in the years after the conflict was keenly shaped by these early rumours, which entangled specific ideas of the illness with feelings of betrayal, distrust and ambiguity. Informed by the general literature on illness narratives, we explore how the transmission of ideas and causal theories were themselves instrumental in the emergence of the condition as it was experienced.

Suggested Citation

  • Cohn, Simon & Dyson, Clare & Wessely, S., 2008. "Early accounts of Gulf War illness and the construction of narratives in UK service personnel," Social Science & Medicine, Elsevier, vol. 67(11), pages 1641-1649, December.
  • Handle: RePEc:eee:socmed:v:67:y:2008:i:11:p:1641-1649
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277-9536(08)00444-9
    Download Restriction: Full text for ScienceDirect subscribers only
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Noymer, Andrew, 2001. "The Transmission and Persistence of`'Urban Legends': Sociological Application of Age-Structured Epidemic Models," Center for Culture, Organizations and Politics, Working Paper Series qt0rv3c82q, Center for Culture, Organizations and Politics of theInstitute for Research on Labor and Employment, UC Berkeley.
    2. Dumit, Joseph, 2006. "Illnesses you have to fight to get: Facts as forces in uncertain, emergent illnesses," Social Science & Medicine, Elsevier, vol. 62(3), pages 577-590, February.
    3. Good, Byron J. & Del Vecchio Good, Mary-Jo & Togan, Isenbike & Ilbars, Zafer & Güvener, A. & Gelisen, Ilker, 1994. "In the subjenctive mode: Epilepsy narratives in Turkey," Social Science & Medicine, Elsevier, vol. 38(6), pages 835-842, March.
    4. Zavestoski, Stephen & Brown, Phil & McCormick, Sabrina & Mayer, Brian & D'Ottavi, Maryhelen & Lucove, Jaime C., 2004. "Patient activism and the struggle for diagnosis: Gulf War illnesses and other medically unexplained physical symptoms in the US," Social Science & Medicine, Elsevier, vol. 58(1), pages 161-175, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Trundle, Catherine, 2011. "Biopolitical endpoints: Diagnosing a deserving British nuclear test veteran," Social Science & Medicine, Elsevier, vol. 73(6), pages 882-888, September.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Rotolo, Thomas & Lengefeld, Michael, 2020. "Clearing the cobwebs: An analysis of the timing of youth concussion legislation in U.S. states," Social Science & Medicine, Elsevier, vol. 265(C).
    2. Epstein, Steven, 2016. "The politics of health mobilization in the United States: The promise and pitfalls of “disease constituencies”," Social Science & Medicine, Elsevier, vol. 165(C), pages 246-254.
    3. Locock, Louise & Nettleton, Sarah & Kirkpatrick, Susan & Ryan, Sara & Ziebland, Sue, 2016. "‘I knew before I was told’: Breaches, cues and clues in the diagnostic assemblage," Social Science & Medicine, Elsevier, vol. 154(C), pages 85-92.
    4. Trundle, Catherine, 2011. "Biopolitical endpoints: Diagnosing a deserving British nuclear test veteran," Social Science & Medicine, Elsevier, vol. 73(6), pages 882-888, September.
    5. Battin, Gudrun Songøygard & Romsland, Grace Inga & Christiansen, Bjørg, 2021. "The puzzle of therapeutic emplotment: creating a shared clinical plot through interprofessional interaction in biopsychosocial pain rehabilitation," Social Science & Medicine, Elsevier, vol. 277(C).
    6. Phillips, Tarryn, 2012. "Repressive authenticity in the quest for legitimacy: Surveillance and the contested illness lawsuit," Social Science & Medicine, Elsevier, vol. 75(10), pages 1762-1768.
    7. Schaepe, Karen Sue, 2011. "Bad news and first impressions: Patient and family caregiver accounts of learning the cancer diagnosis," Social Science & Medicine, Elsevier, vol. 73(6), pages 912-921, September.
    8. Vololona Rabeharisoa & Michel Callon & Angela Marques Filipe & João Arriscado Nunes & Florence Paterson & Frédéric Vergnaud, 2012. "The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research," CSI Working Papers Series 026, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    9. Madeleine Akrich, 2010. "From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet," Sociological Research Online, , vol. 15(2), pages 116-132, May.
    10. Brian Walitt & Richard L Nahin & Robert S Katz & Martin J Bergman & Frederick Wolfe, 2015. "The Prevalence and Characteristics of Fibromyalgia in the 2012 National Health Interview Survey," PLOS ONE, Public Library of Science, vol. 10(9), pages 1-16, September.
    11. Claire Edwards & Etaoine Howlett & Madeleine Akrich & Vololona Rabeharisoa, 2012. "Attention deficit hyperactivity disorder in France and Ireland: parents' groups' scientific and political framing of an unsettled condition," CSI Working Papers Series 024, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    12. Vololona Rabeharisoa & Orla O'Donovan, 2013. "‘Europe of patients, Europe for patients’: the Europeanization of healthcare policies by European patients’ organizations," CSI Working Papers Series 030, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    13. Kuchinskaya, Olga & Parker, Lisa S., 2018. "‘Recurrent losers unite’: Online forums, evidence-based activism, and pregnancy loss," Social Science & Medicine, Elsevier, vol. 216(C), pages 74-80.
    14. Copelton, Denise A. & Valle, Giuseppina, 2009. ""You don't need a prescription to go gluten-free": The scientific self-diagnosis of celiac disease," Social Science & Medicine, Elsevier, vol. 69(4), pages 623-631, August.
    15. Bloeser, Katharine & McCarron, Kelly K. & Merker, Vanessa L. & Hyde, Justeen & Bolton, Rendelle E. & Anastasides, Nicole & Petrakis, Beth Ann & Helmer, Drew A. & Santos, Susan & Litke, David & Pigeon,, 2021. "“Because the country, it seems though, has turned their back on me”: Experiences of institutional betrayal among veterans living with Gulf War Illness," Social Science & Medicine, Elsevier, vol. 284(C).
    16. Hardman, Doug & Ongaro, Giulio, 2020. "Subjunctive medicine: A manifesto," Social Science & Medicine, Elsevier, vol. 256(C).
    17. Caulkins, Jonathan P. & Feichtinger, Gustav & Tragler, Gernot & Wallner, Dagmar, 2010. "When in a drug epidemic should the policy objective switch from use reduction to harm reduction?," European Journal of Operational Research, Elsevier, vol. 201(1), pages 308-318, February.
    18. Jutel, Annemarie, 2010. "Framing disease: The example of female hypoactive sexual desire disorder," Social Science & Medicine, Elsevier, vol. 70(7), pages 1084-1090, April.
    19. González-Parra, Gilberto & Acedo, L. & Villanueva Micó, Rafael-J. & Arenas, Abraham J., 2010. "Modeling the social obesity epidemic with stochastic networks," Physica A: Statistical Mechanics and its Applications, Elsevier, vol. 389(17), pages 3692-3701.
    20. Greco, Monica, 2012. "The classification and nomenclature of ‘medically unexplained symptoms’: Conflict, performativity and critique," Social Science & Medicine, Elsevier, vol. 75(12), pages 2362-2369.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:67:y:2008:i:11:p:1641-1649. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.