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Women as moral pioneers? Experiences of first trimester antenatal screening

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  • Williams, Clare
  • Sandall, Jane
  • Lewando-Hundt, Gillian
  • Heyman, Bob
  • Spencer, Kevin
  • Grellier, Rachel

Abstract

The implementation of innovative medical technologies can raise unprecedented ethical, legal and social dilemmas. This is particularly so in the area of antenatal screening, which is dominated by the language of risk and probabilities. Second trimester serum screening for Down's syndrome and neural tube defects has a well-established place in antenatal care. Increasingly, first trimester screening with biochemical and ultrasound markers is being proposed as advance on this, yielding higher detection rates of Down's syndrome at an earlier gestational age. This article explores the experiences of 14 women offered innovative first trimester screening, which takes place within the context of a detailed ultrasound scan. The study is set within the UK, where recent policy changes mean that the offer of screening for fetal anomalies, particularly Down's syndrome, will become a routine part of antenatal care and offered to all pregnant women. This paper focuses on the significance of the scan in first trimester screening, and some of the potential dilemmas for women that can result from this. It then discusses the ways in which women made their decisions about screening, in particular, their work as 'moral pioneers'. We found that the part played by the ultrasound scan in first trimester screening, particularly in relation to the higher-quality images now being obtained, has the potential to introduce new and novel ethical dilemmas for pregnant women. Although concerns have been raised about pregnant women viewing ultrasound scans as benign, many of the women reported having thought carefully through their own moral beliefs and values prior to screening. It seems that whatever other implications they may have, first trimester screening technologies will continue the tradition of pregnant women acting as 'moral pioneers' in increasingly complex settings.

Suggested Citation

  • Williams, Clare & Sandall, Jane & Lewando-Hundt, Gillian & Heyman, Bob & Spencer, Kevin & Grellier, Rachel, 2005. "Women as moral pioneers? Experiences of first trimester antenatal screening," Social Science & Medicine, Elsevier, vol. 61(9), pages 1983-1992, November.
  • Handle: RePEc:eee:socmed:v:61:y:2005:i:9:p:1983-1992
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    References listed on IDEAS

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    1. Williams, Clare & Alderson, Priscilla & Farsides, Bobbie, 2002. "Too many choices? Hospital and community staff reflect on the future of prenatal screening," Social Science & Medicine, Elsevier, vol. 55(5), pages 743-753, September.
    2. Getz, Linn & Kirkengen, Anne Luise, 2003. "Ultrasound screening in pregnancy: advancing technology, soft markers for fetal chromosomal aberrations, and unacknowledged ethical dilemmas," Social Science & Medicine, Elsevier, vol. 56(10), pages 2045-2057, May.
    3. Williams, Clare, 2005. "Framing the fetus in medical work: rituals and practices," Social Science & Medicine, Elsevier, vol. 60(9), pages 2085-2095, May.
    4. Press, Nancy & Browner, C. H., 1997. "Why women say yes to prenatal diagnosis," Social Science & Medicine, Elsevier, vol. 45(7), pages 979-989, October.
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    1. Hammer, Raphaël P. & Burton-Jeangros, Claudine, 2013. "Tensions around risks in pregnancy: A typology of women's experiences of surveillance medicine," Social Science & Medicine, Elsevier, vol. 93(C), pages 55-63.
    2. Ryan, Kath & Bissell, Paul & Alexander, Jo, 2010. "Moral work in women's narratives of breastfeeding," Social Science & Medicine, Elsevier, vol. 70(6), pages 951-958, March.
    3. Löwy, Ilana, 2022. "Non-invasive prenatal testing: A diagnostic innovation shaped by commercial interests and the regulation conundrum," Social Science & Medicine, Elsevier, vol. 304(C).
    4. Williams, Clare & Ehrich, Kathryn & Farsides, Bobbie & Scott, Rosamund, 2007. "Facilitating choice, framing choice: Staff views on widening the scope of preimplantation genetic diagnosis in the UK," Social Science & Medicine, Elsevier, vol. 65(6), pages 1094-1105, September.
    5. Reid, Bernie & Sinclair, Marlene & Barr, Owen & Dobbs, Frank & Crealey, Grainne, 2009. "A meta-synthesis of pregnant women's decision-making processes with regard to antenatal screening for Down syndrome," Social Science & Medicine, Elsevier, vol. 69(11), pages 1561-1573, December.
    6. Gammeltoft, Tine & Nguyen, Hanh Thi Thuy, 2007. "Fetal conditions and fatal decisions: Ethical dilemmas in ultrasound screening in Vietnam," Social Science & Medicine, Elsevier, vol. 64(11), pages 2248-2259, June.
    7. Lalor, Joan & Begley, Cecily M. & Galavan, Eoin, 2009. "Recasting Hope: A process of adaptation following fetal anomaly diagnosis," Social Science & Medicine, Elsevier, vol. 68(3), pages 462-472, February.
    8. Heyman, Bob & Hundt, Gillian & Sandall, Jane & Spencer, Kevin & Williams, Clare & Grellier, Rachel & Pitson, Laura, 2006. "On being at higher risk: A qualitative study of prenatal screening for chromosomal anomalies," Social Science & Medicine, Elsevier, vol. 62(10), pages 2360-2372, May.

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