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Why women say yes to prenatal diagnosis

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  • Press, Nancy
  • Browner, C. H.

Abstract

Despite considerable concern of bioethicists, disabilities rights activists, feminists and others about the spread of prenatal diagnostic technologies, their routine acceptance in many parts of the world continues at a rapid pace. Yet, there is wide variation by country and region in rates of acceptance of prenatal diagnosis. We draw on John McKinlay's model of how a medical innovation becomes routinized to explore the circumstances that led to the widespread use of one prenatal diagnostic screen--the maternal serum alpha fetoprotein (MSAFP) test for the detection of neural tube defects and other developmental disabilities. As predicted by McKinlay's model, analysis of published data suggests that strong institutional or provider support is the best predictor of women's level of MSAFP test acceptance. Data collected at a health maintenance organization in California illuminate the processes through which medico-legal and institutional forces affect the use of MSAFP screening. By examining the language women use to talk about MSAFP screening, we show how providers also shape women's understandings of the meaning and purpose of MSAFP screening. These data ultimately shed light on how the very ethical issues which concern critics of prenatal diagnosis become obscured in the processes by which this screening test becomes accepted as routine.

Suggested Citation

  • Press, Nancy & Browner, C. H., 1997. "Why women say yes to prenatal diagnosis," Social Science & Medicine, Elsevier, vol. 45(7), pages 979-989, October.
  • Handle: RePEc:eee:socmed:v:45:y:1997:i:7:p:979-989
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    Cited by:

    1. Vassy, Carine & Rosman, Sophia & Rousseau, Bénédicte, 2014. "From policy making to service use. Down's syndrome antenatal screening in England, France and the Netherlands," Social Science & Medicine, Elsevier, vol. 106(C), pages 67-74.
    2. Hammer, Raphaël P. & Burton-Jeangros, Claudine, 2013. "Tensions around risks in pregnancy: A typology of women's experiences of surveillance medicine," Social Science & Medicine, Elsevier, vol. 93(C), pages 55-63.
    3. Williams, Clare, 2005. "Framing the fetus in medical work: rituals and practices," Social Science & Medicine, Elsevier, vol. 60(9), pages 2085-2095, May.
    4. Andaya, Elise & Campo-Engelstein, Lisa, 2021. "Conceptualizing Pain and Personhood in the Periviable Period: Perspectives from Reproductive Health and Neonatal Intensive Care Unit Clinicians," Social Science & Medicine, Elsevier, vol. 269(C).
    5. García, Elisa & Timmermans, Danielle R.M. & van Leeuwen, Evert, 2008. "The impact of ethical beliefs on decisions about prenatal screening tests: Searching for justification," Social Science & Medicine, Elsevier, vol. 66(3), pages 753-764, February.
    6. Williams, Clare & Sandall, Jane & Lewando-Hundt, Gillian & Heyman, Bob & Spencer, Kevin & Grellier, Rachel, 2005. "Women as moral pioneers? Experiences of first trimester antenatal screening," Social Science & Medicine, Elsevier, vol. 61(9), pages 1983-1992, November.
    7. Graham, Ruth H. & Robson, Stephen C. & Rankin, Judith M., 2008. "Understanding feticide: An analytic review," Social Science & Medicine, Elsevier, vol. 66(2), pages 289-300, January.
    8. Press, Nancy & Reynolds, Susan & Pinsky, Linda & Murthy, Vinaya & Leo, Michael & Burke, Wylie, 2005. "'That's like chopping off a finger because you're afraid it might get broken': Disease and illness in women's views of prophylactic mastectomy," Social Science & Medicine, Elsevier, vol. 61(5), pages 1106-1117, September.
    9. Shaw, Alison, 2011. "Risk and reproductive decisions: British Pakistani couples' responses to genetic counselling," Social Science & Medicine, Elsevier, vol. 73(1), pages 111-120, July.
    10. Marion Haas & Jane Hall & Richard De Abreu Lourenco, 2001. "It's what's expected: genetic testing for inherited conditions, CHERE Discussion Paper No 46," Discussion Papers 46, CHERE, University of Technology, Sydney.
    11. Vassy, Carine, 2006. "From a genetic innovation to mass health programmes: The diffusion of Down's Syndrome prenatal screening and diagnostic techniques in France," Social Science & Medicine, Elsevier, vol. 63(8), pages 2041-2051, October.
    12. Heyman, Bob & Hundt, Gillian & Sandall, Jane & Spencer, Kevin & Williams, Clare & Grellier, Rachel & Pitson, Laura, 2006. "On being at higher risk: A qualitative study of prenatal screening for chromosomal anomalies," Social Science & Medicine, Elsevier, vol. 62(10), pages 2360-2372, May.

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