IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v131y2015icp31-39.html
   My bibliography  Save this article

Non-disclosure of chronic kidney disease in primary care and the limits of instrumental rationality in chronic illness self-management

Author

Listed:
  • Daker-White, Gavin
  • Rogers, Anne
  • Kennedy, Anne
  • Blakeman, Thomas
  • Blickem, Christian
  • Chew-Graham, Carolyn

Abstract

Early detection of long term conditions is predicated on assumptions that lifestyle changes and medications can be used to reduce or manage the risk of condition progression. However, ambiguity remains about the nature and place of diagnostic disclosure to people in newly recognised or asymptomatic ‘pre’ conditions such as early stage chronic kidney disease (CKD). The disclosure of a diagnosis is relevant to instigating strategies which rely on actively engaging patients as self-managers of their own care. Whilst primary care routinely records a diagnosis of early stage CKD, little is known about how patients learn about the fact that they have CKD or how they respond to this. This study aimed to explore patients' experiences of disclosure of CKD in primary care settings.

Suggested Citation

  • Daker-White, Gavin & Rogers, Anne & Kennedy, Anne & Blakeman, Thomas & Blickem, Christian & Chew-Graham, Carolyn, 2015. "Non-disclosure of chronic kidney disease in primary care and the limits of instrumental rationality in chronic illness self-management," Social Science & Medicine, Elsevier, vol. 131(C), pages 31-39.
    • Handle: RePEc:eee:socmed:v:131:y:2015:i:c:p:31-39
    DOI: 10.1016/j.socscimed.2015.02.035
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953615001276
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2015.02.035?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. McDonald, Ruth & Cheraghi-Sohi, Sudeh & Bayes, Sara & Morriss, Richard & Kai, Joe, 2013. "Competing and coexisting logics in the changing field of English general medical practice," Social Science & Medicine, Elsevier, vol. 93(C), pages 47-54.
    2. Barry, Christine A. & Stevenson, Fiona A. & Britten, Nicky & Barber, Nick & Bradley, Colin P., 2001. "Giving voice to the lifeworld. More humane, more effective medical care? A qualitative study of doctor-patient communication in general practice," Social Science & Medicine, Elsevier, vol. 53(4), pages 487-505, August.
    3. Armstrong, David, 2011. "Diagnosis and nosology in primary care," Social Science & Medicine, Elsevier, vol. 73(6), pages 801-807, September.
    4. Bugge, Carol & Entwistle, Vikki A. & Watt, Ian S., 2006. "The significance for decision-making of information that is not exchanged by patients and health professionals during consultations," Social Science & Medicine, Elsevier, vol. 63(8), pages 2065-2078, October.
    5. Stevenson, Fiona A. & Barry, Christine A. & Britten, Nicky & Barber, Nick & Bradley, Colin P., 2000. "Doctor-patient communication about drugs: the evidence for shared decision making," Social Science & Medicine, Elsevier, vol. 50(6), pages 829-840, March.
    6. Gordon, Deborah R. & Paci, Eugenio, 1997. "Disclosure practices and cultural narratives: Understanding concealment and silence around cancer in Tuscany, Italy," Social Science & Medicine, Elsevier, vol. 44(10), pages 1433-1452, May.
    7. Gilson, Lucy, 2003. "Trust and the development of health care as a social institution," Social Science & Medicine, Elsevier, vol. 56(7), pages 1453-1468, April.
    8. Jutel, Annemarie & Nettleton, Sarah, 2011. "Towards a sociology of diagnosis: Reflections and opportunities," Social Science & Medicine, Elsevier, vol. 73(6), pages 793-800, September.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Chiu-Chu Lin & Shang-Jyh Hwang, 2020. "Patient-Centered Self-Management in Patients with Chronic Kidney Disease: Challenges and Implications," IJERPH, MDPI, vol. 17(24), pages 1-13, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Doblytė, Sigita, 2022. "The vicious cycle of distrust: Access, quality, and efficiency within a post-communist mental health system," Social Science & Medicine, Elsevier, vol. 292(C).
    2. Rodrigues, Carla F., 2021. "Communicative trust in therapeutic encounters: users’ experiences in public healthcare facilities and community pharmacies in Maputo, Mozambique," Social Science & Medicine, Elsevier, vol. 291(C).
    3. Fudge, Nina & Swinglehurst, Deborah, 2022. "Keeping in balance on the multimorbidity tightrope: A narrative analysis of older patients’ experiences of living with and managing multimorbidity," Social Science & Medicine, Elsevier, vol. 292(C).
    4. Ariss, Steven M., 2009. "Asymmetrical knowledge claims in general practice consultations with frequently attending patients: Limitations and opportunities for patient participation," Social Science & Medicine, Elsevier, vol. 69(6), pages 908-919, September.
    5. May, Carl & Rapley, Tim & Moreira, Tiago & Finch, Tracy & Heaven, Ben, 2006. "Technogovernance: Evidence, subjectivity, and the clinical encounter in primary care medicine," Social Science & Medicine, Elsevier, vol. 62(4), pages 1022-1030, February.
    6. Locock, Louise & Nettleton, Sarah & Kirkpatrick, Susan & Ryan, Sara & Ziebland, Sue, 2016. "‘I knew before I was told’: Breaches, cues and clues in the diagnostic assemblage," Social Science & Medicine, Elsevier, vol. 154(C), pages 85-92.
    7. Nettleton, Sarah & Kitzinger, Jenny & Kitzinger, Celia, 2014. "A diagnostic illusory? The case of distinguishing between “vegetative” and “minimally conscious” states," Social Science & Medicine, Elsevier, vol. 116(C), pages 134-141.
    8. Coast, Joanna, 2018. "A history that goes hand in hand: Reflections on the development of health economics and the role played by Social Science & Medicine, 1967–2017," Social Science & Medicine, Elsevier, vol. 196(C), pages 227-232.
    9. Smirnova, Michelle & Owens, Jennifer Gatewood, 2017. "Medicalized addiction, self-medication, or nonmedical prescription drug use? How trust figures into incarcerated women's conceptualization of illicit prescription drug use," Social Science & Medicine, Elsevier, vol. 183(C), pages 106-115.
    10. Weiste, Elina & Peräkylä, Anssi & Valkeapää, Taina & Savander, Enikö & Hintikka, Jukka, 2018. "Institutionalised otherness: Patients references to psychiatric diagnostic categories," Social Science & Medicine, Elsevier, vol. 207(C), pages 71-79.
    11. Costa-Font, Joan & Vilaplana-Prieto, Cristina, 2023. "Health System Trust and Compliance with COVID-19 Restrictions," IZA Discussion Papers 15961, Institute of Labor Economics (IZA).
    12. Stasiulis, Elaine & Gibson, Barbara E. & Webster, Fiona & Boydell, Katherine M., 2020. "Resisting governance and the production of trust in early psychosis intervention," Social Science & Medicine, Elsevier, vol. 253(C).
    13. Rosemarie Sheehan & Gerard Fealy, 2020. "Trust in the nurse: Findings from a survey of hospitalised children," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(21-22), pages 4289-4299, November.
    14. Paraponaris, A. & Verger, P. & Desquins, B. & Villani, P. & Bouvenot, G. & Rochaix, L. & Gourheux, J. C. & Moatti, J. P. AU -, 2004. "Delivering generics without regulatory incentives?: Empirical evidence from French general practitioners about willingness to prescribe international non-proprietary names," Health Policy, Elsevier, vol. 70(1), pages 23-32, October.
    15. Jae-Young Lim & Hyun-Hoon Lee & Yeon-Hee Hwang, 2011. "Trust on doctor, social capital and medical care use of the elderly," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 12(2), pages 175-188, April.
    16. Dyer, Thomas Anthony & Owens, Janine & Robinson, Peter Glenn, 2014. "The acceptability of care delegation in skill-mix: The salience of trust," Health Policy, Elsevier, vol. 117(2), pages 170-178.
    17. Xue-Jing Liu & Gustavo S. Mesch, 2020. "The Adoption of Preventive Behaviors during the COVID-19 Pandemic in China and Israel," IJERPH, MDPI, vol. 17(19), pages 1-18, September.
    18. Jamison, Amelia M. & Quinn, Sandra Crouse & Freimuth, Vicki S., 2019. "“You don't trust a government vaccine”: Narratives of institutional trust and influenza vaccination among African American and white adults," Social Science & Medicine, Elsevier, vol. 221(C), pages 87-94.
    19. Sinclair, Craig & Smith, Jessica & Toussaint, Yann & Auret, Kirsten, 2014. "Discussing dying in the diaspora: Attitudes towards advance care planning among first generation Dutch and Italian migrants in rural Australia," Social Science & Medicine, Elsevier, vol. 101(C), pages 86-93.
    20. Heritage, John & McArthur, Amanda, 2019. "The diagnostic moment: A study in US primary care," Social Science & Medicine, Elsevier, vol. 228(C), pages 262-271.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:131:y:2015:i:c:p:31-39. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.