IDEAS home Printed from https://ideas.repec.org/a/eee/hepoli/v126y2022i10p1023-1038.html
   My bibliography  Save this article

Public and patient involvement in health policy decision-making on the health system level – A scoping review

Author

Listed:
  • Baumann, Lisa Ann
  • Reinhold, Anna Katharina
  • Brütt, Anna Levke

Abstract

•There is a lack of studies comparing involvement methods in health policy.•Only few studies provide a sufficient description of the implemented involvement method.•External contextual factors are mainly facilitators or barriers for successful involvement.•Design aspects (issue, aim, participants) of PPI are important for method selection.•More systematic evaluation and better reporting of PPI is needed.

Suggested Citation

  • Baumann, Lisa Ann & Reinhold, Anna Katharina & Brütt, Anna Levke, 2022. "Public and patient involvement in health policy decision-making on the health system level – A scoping review," Health Policy, Elsevier, vol. 126(10), pages 1023-1038.
  • Handle: RePEc:eee:hepoli:v:126:y:2022:i:10:p:1023-1038
    DOI: 10.1016/j.healthpol.2022.07.007
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0168851022001919
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.healthpol.2022.07.007?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Julia Abelson & P-G Forest & J Eyles & P Smith & E Martin & F-P Gauvin, 2001. "Deliberations About Deliberative Methods: Issues in the Design and Evaluation of Public Consultation Processes," Centre for Health Economics and Policy Analysis Working Paper Series 2001-04, Centre for Health Economics and Policy Analysis (CHEPA), McMaster University, Hamilton, Canada.
    2. Flood, Colleen M., 2015. "Scoping the shape of an iceberg: the future of public involvement in heath policy: reflecting on ‘Public involvement policies in health: exploring their conceptual basis’," Health Economics, Policy and Law, Cambridge University Press, vol. 10(4), pages 381-385, October.
    3. O'Doherty, Kieran C. & Hawkins, Alice K. & Burgess, Michael M., 2012. "Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation," Social Science & Medicine, Elsevier, vol. 75(9), pages 1604-1611.
    4. Wait, Suzanne & Nolte, Ellen, 2006. "Public involvement policies in health: exploring their conceptual basis," Health Economics, Policy and Law, Cambridge University Press, vol. 1(2), pages 149-162, April.
    5. Dimova, Antoniya & Rohova, Maria & Hasardzhiev, Stanimir & Spranger, Anne, 2018. "An innovative approach to participatory health policy development in Bulgaria: The conception and first achievements of the Partnership for Health," Health Policy, Elsevier, vol. 122(2), pages 81-86.
    6. Abelson, Julia & Forest, Pierre-Gerlier & Eyles, John & Casebeer, Ann & Martin, Elisabeth & Mackean, Gail, 2007. "Examining the role of context in the implementation of a deliberative public participation experiment: Results from a Canadian comparative study," Social Science & Medicine, Elsevier, vol. 64(10), pages 2115-2128, May.
    7. John Boswell & Catherine Settle & Anni Dugdale, 2015. "Who Speaks, and in What Voice? The Challenge of Engaging 'The Public' in Health Policy Decision-Making," Public Management Review, Taylor & Francis Journals, vol. 17(9), pages 1358-1374, October.
    8. Jones, Mavis & Einsiedel, Edna, 2011. "Institutional policy learning and public consultation: The Canadian xenotransplantation experience," Social Science & Medicine, Elsevier, vol. 73(5), pages 655-662, September.
    9. Deng, Chung-Yeh & Wu, Chia-Ling, 2010. "An innovative participatory method for newly democratic societies: The "civic groups forum" on national health insurance reform in Taiwan," Social Science & Medicine, Elsevier, vol. 70(6), pages 896-903, March.
    10. Dobrow, Mark J. & Goel, Vivek & Upshur, R. E. G., 2004. "Evidence-based health policy: context and utilisation," Social Science & Medicine, Elsevier, vol. 58(1), pages 207-217, January.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Carman, Kristin L. & Mallery, Coretta & Maurer, Maureen & Wang, Grace & Garfinkel, Steve & Yang, Manshu & Gilmore, Dierdre & Windham, Amy & Ginsburg, Marjorie & Sofaer, Shoshanna & Gold, Marthe & Path, 2015. "Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial," Social Science & Medicine, Elsevier, vol. 133(C), pages 11-20.
    2. Deng, Chung-Yeh & Wu, Chia-Ling, 2010. "An innovative participatory method for newly democratic societies: The "civic groups forum" on national health insurance reform in Taiwan," Social Science & Medicine, Elsevier, vol. 70(6), pages 896-903, March.
    3. Jonas Lander & Tobias Hainz & Irene Hirschberg & Daniel Strech, 2014. "Current Practice of Public Involvement Activities in Biomedical Research and Innovation: A Systematic Qualitative Review," PLOS ONE, Public Library of Science, vol. 9(12), pages 1-17, December.
    4. Djellouli, Nehla & Jones, Lorelei & Barratt, Helen & Ramsay, Angus I.G. & Towndrow, Steven & Oliver, Sandy, 2019. "Involving the public in decision-making about large-scale changes to health services: A scoping review," Health Policy, Elsevier, vol. 123(7), pages 635-645.
    5. Kieran C. O’Doherty & Michael K. MacKenzie & Dan Badulescu & Michael M. Burgess, 2013. "Explosives, Genomics, and the Environment," SAGE Open, , vol. 3(1), pages 21582440134, March.
    6. Dobiášová, Karolína & Kotherová, Zuzana & Numerato, Dino, 2021. "Institutional reforms to strengthen patient and public involvement in the Czech Republic since 2014," Health Policy, Elsevier, vol. 125(5), pages 582-586.
    7. Knight, Lynn Valerie & Mattick, Karen, 2006. "'When I first came here, I thought medicine was black and white': Making sense of medical students' ways of knowing," Social Science & Medicine, Elsevier, vol. 63(4), pages 1084-1096, August.
    8. Alison Bullock & Zoё Slote Morris & Christine Atwell, 2013. "Exchanging knowledge through healthcare manager placements in research teams," The Service Industries Journal, Taylor & Francis Journals, vol. 33(13-14), pages 1363-1380, October.
    9. Degeling, Chris & Rychetnik, Lucie & Street, Jackie & Thomas, Rae & Carter, Stacy M., 2017. "Influencing health policy through public deliberation: Lessons learned from two decades of Citizens'/community juries," Social Science & Medicine, Elsevier, vol. 179(C), pages 166-171.
    10. Tolib N. Mirzoev & Andrew Green & Ricky Van Kalliecharan, 2015. "Framework for assessing the capacity of a health ministry to conduct health policy processes—a case study from Tajikistan," International Journal of Health Planning and Management, Wiley Blackwell, vol. 30(2), pages 173-185, April.
    11. Lopes, Edilene & Carter, Drew & Street, Jackie, 2015. "Power relations and contrasting conceptions of evidence in patient-involvement processes used to inform health funding decisions in Australia," Social Science & Medicine, Elsevier, vol. 135(C), pages 84-91.
    12. Deas, L. & Mattu, L. & Gnich, W., 2013. "Intelligent policy making? Key actors' perspectives on the development and implementation of an early years' initiative in Scotland's public health arena," Social Science & Medicine, Elsevier, vol. 96(C), pages 1-8.
    13. Daniela E. Miranda & Manuel Garcia-Ramirez & Fabricio E. Balcazar & Yolanda Suarez-Balcazar, 2019. "A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain," IJERPH, MDPI, vol. 16(19), pages 1-22, October.
    14. de Goede, Joyce & Putters, Kim & van Oers, Hans, 2012. "Utilization of epidemiological research for the development of local public health policy in the Netherlands: A case study approach," Social Science & Medicine, Elsevier, vol. 74(5), pages 707-714.
    15. Byers Vivienne & Fahey Daragh & Mullins Carol & Roe Carol, 2017. "The Patient Survey Programme: Transforming the patient experience in Irish healthcare," Administration, Sciendo, vol. 65(4), pages 83-99, December.
    16. Lange, Isabelle L. & Feroz, Ferozuddin & Naeem, Ahmad Jan & Saeedzai, Sayed Ataullah & Arifi, Fatima & Singh, Neha & Blanchet, Karl, 2022. "The development of Afghanistan's Integrated Package of Essential Health Services: Evidence, expertise and ethics in a priority setting process," Social Science & Medicine, Elsevier, vol. 305(C).
    17. Montesanti, Stephanie Rose & Abelson, Julia & Lavis, John N. & Dunn, James R., 2015. "The value of frameworks as knowledge translation mechanisms to guide community participation practice in Ontario CHCs," Social Science & Medicine, Elsevier, vol. 142(C), pages 223-231.
    18. Senier, Laura & Smollin, Leandra & Lee, Rachael & Nicoll, Lauren & Shields, Michael & Tan, Catherine, 2018. "Navigating the evidentiary turn in public health: Sensemaking strategies to integrate genomics into state-level chronic disease prevention programs," Social Science & Medicine, Elsevier, vol. 211(C), pages 207-215.
    19. Hodgetts, Katherine & Elshaug, Adam G. & Hiller, Janet E., 2012. "What counts and how to count it: Physicians’ constructions of evidence in a disinvestment context," Social Science & Medicine, Elsevier, vol. 75(12), pages 2191-2199.
    20. de Leeuw, Evelyne & Skovgaard, Thomas, 2005. "Utility-driven evidence for healthy cities: Problems with evidence generation and application," Social Science & Medicine, Elsevier, vol. 61(6), pages 1331-1341, September.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:hepoli:v:126:y:2022:i:10:p:1023-1038. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu or the person in charge (email available below). General contact details of provider: http://www.elsevier.com/locate/healthpol .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.