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How do people live life successfully with Parkinson's disease?

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  • Mi‐Young Kang
  • Caroline Ellis‐Hill

Abstract

Aims and objectives The aim of this paper is to explore how people live life successfully with Parkinson's disease and what contributed to the level of success. Objectives To examine the level of success as defined by people with Parkinson's disease. To find what contributed to the level of success. Background Self‐care support has gained importance for supporting people with their chronic diseases including Parkinson's disease. Although self‐care and life adjustments can improve patients’ general well‐being, it is unclear which approaches best facilitate positive adjustments to illness. Design Semi‐structured interviews with participants with Parkinson's disease. Methods Eight participants living with Parkinson's disease for 2–16 years were recruited from a Parkinson's disease voluntary group in the UK. Interviews covered their perceived level of success and the factors which they perceived led to that success. Thematic analysis was used to analyse the data. Results Participants rated a high level of success in living with Parkinson's disease with an average personal rating 75/100 despite facing difficulties. Successful living was perceived to have taken place when people were either (1) able to return to their usual state of health or (2) considered themselves to be stable within a new/readjusted state of health. Aspects which were perceived to support positive psychosocial adjustment included a positive mindset, determination, acceptance of new challenges and family support. Conclusion Maintaining usual life and physical ability is the major concern among the people with Parkinson's disease. It would be helpful for health care professionals to identify what constitutes a ‘usual’ life for that person and to support them to develop a positive mindset and acceptance of new challenges, drawing on the determination of the person as well as any available family support. Relevance to clinical practice In supporting self‐care, it is helpful to gain information about the subjective experience of living with Parkinson's disease including their perceived level of success at the time and what led to that perceived success for that person.

Suggested Citation

  • Mi‐Young Kang & Caroline Ellis‐Hill, 2015. "How do people live life successfully with Parkinson's disease?," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(15-16), pages 2314-2322, August.
    • Handle: RePEc:wly:jocnur:v:24:y:2015:i:15-16:p:2314-2322
    DOI: 10.1111/jocn.12819
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    References listed on IDEAS

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    1. Sharpe, Louise & Curran, Leah, 2006. "Understanding the process of adjustment to illness," Social Science & Medicine, Elsevier, vol. 62(5), pages 1153-1166, March.
    2. Bisschop, M. Isabella & Kriegsman, Didi M. W. & Beekman, Aartjan T. F. & Deeg, D.J.H.Dorly J. H., 2004. "Chronic diseases and depression: the modifying role of psychosocial resources," Social Science & Medicine, Elsevier, vol. 59(4), pages 721-733, August.
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    Cited by:

    1. Leire Ambrosio & Mari Carmen Portillo & Carmen Rodriguez‐Blazquez & Jose Manuel Rojo & Pablo Martinez‐Martin & EC‐PC Validation Group, 2019. "Influencing factors when living with Parkinson’s disease: A cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(17-18), pages 3168-3176, September.
    2. MoonKi Choi & JuHee Lee & Eui Geum Oh & Sang Hui Chu & Young H. Sohn & Chang Gi Park, 2020. "Factors Associated With Uncertainty in Illness Among People With Parkinson’s Disease," Clinical Nursing Research, , vol. 29(7), pages 469-478, September.

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