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But Women Can't Have ‘Hemophilia’!: A Look at the Lives of Women with Bleeding Disorder

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  • Diane Kholos Wysocki

Abstract

Most of the literature about hemophilia has been from a medical perspective and about men. This on-going project has been to document the lives and ‘voices’ of women who have a bleeding disorder, their experiences with the medical community, and the course of their diagnosis and treatment. The women in this study were predominantly Caucasian (92%), were currently married (66.7%), had (68.9%), and of those women who had children, the majority of their children (67.9%), both boys and girls, as well as other family members(63.3%) had some type of bleeding disorder. Findings revealed there was on average, a 14 year gap between the first bleeding episode and the diagnosis of a bleeding disorder. Women reported long, heavy menstrual cycles and having consulted a physician for menstrual bleeding as teenagers. Treatments for menstrual bleeding included D and C's (42.9%) and hysterectomies (34.5%), while referrals to Hemophilia Treatment Centers for a consultation were rare.

Suggested Citation

  • Diane Kholos Wysocki, 1998. "But Women Can't Have ‘Hemophilia’!: A Look at the Lives of Women with Bleeding Disorder," Sociological Research Online, , vol. 3(4), pages 14-25, December.
    • Handle: RePEc:sae:socres:v:3:y:1998:i:4:p:14-25
    DOI: 10.5153/sro.194
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    References listed on IDEAS

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    1. R. Coomber, 1997. "Using the Internet for Survey Research," Sociological Research Online, , vol. 2(2), pages 49-58, June.
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    1. N/A, 2004. "Christine Hine (2004) ‘Social Research Methods and the Internet: A Thematic Review’," Sociological Research Online, , vol. 9(2), pages 110-116, May.

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