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Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy

Author

Listed:
  • Emma Aguila
  • Beverly A. Weidmer
  • Alfonso Rivera Illingworth
  • Homero Martinez

Abstract

The informed-consent process seeks to provide complete information to participants about a research project and to protect personal information they may disclose. In this article, we present an informed-consent process that we piloted and improved to obtain consent from older adults in Yucatan, Mexico. Respondents had limited fluency in Spanish, spoke the local Mayan language, and had some physical limitations due to their age. We describe how we adapted the informed-consent process to comply with U.S. and Mexican regulations, while simplifying the forms and providing them in Spanish and Mayan. We present the challenges and lessons learned when dealing with low-literacy older populations, some with diminished autonomy, in a bilingual context and a binational approach to the legal framework.

Suggested Citation

  • Emma Aguila & Beverly A. Weidmer & Alfonso Rivera Illingworth & Homero Martinez, 2016. "Culturally Competent Informed-Consent Process to Evaluate a Social Policy for Older Persons With Low Literacy," SAGE Open, , vol. 6(3), pages 21582440166, August.
    • Handle: RePEc:sae:sagope:v:6:y:2016:i:3:p:2158244016665886
    DOI: 10.1177/2158244016665886
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    References listed on IDEAS

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    1. Barata, Paula C. & Gucciardi, Enza & Ahmad, Farah & Stewart, Donna E., 2006. "Cross-cultural perspectives on research participation and informed consent," Social Science & Medicine, Elsevier, vol. 62(2), pages 479-490, January.
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    Cited by:

    1. Emma Aguila & Jung Ho Park & Alma Vega, 2020. "Living Arrangements and Supplemental Income Programs for Older Adults in Mexico," Demography, Springer;Population Association of America (PAA), vol. 57(4), pages 1345-1368, August.

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