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The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt

Author

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  • Ereny Gobrial

    (Mental Health Department, Faculty of Education, Zagazig University, Shaibet an Nakareyah, Markaz El-Zakazik, Ash Sharqia Governorate 44519, Egypt)

Abstract

The aim of this study was to gain insight into the experiences of mothers caring for children with autism spectrum disorders (ASD) in relation to the early life, resources and to address the consequences of raising a child with ASD in Egypt. Semi-structured interviews were conducted with 14 mothers of children with ASD in Egypt, the children were aged 5–14 years old (mean: 7.3 years). Data were thematically analysed. Results revealed that life with ASD was daunting for the Egyptian mothers. Findings suggested that provision of inadequate education, healthcare and stigma constitute the main issues for mothers. Furthermore, ASD impacted negatively on the social life, emotional wellbeing and sacrifices of mothers of children with ASD. The findings provided valuable insight into the life of mothers, revealing what life really is like for mothers caring for a child with ASD in one of the low-medium-income countries. Understanding the mothers’ experiences of caring for children with ASD is crucial in providing support and developing the services that are urgently needed in Egypt.

Suggested Citation

  • Ereny Gobrial, 2018. "The Lived Experiences of Mothers of Children with the Autism Spectrum Disorders in Egypt," Social Sciences, MDPI, vol. 7(8), pages 1-11, August.
    • Handle: RePEc:gam:jscscx:v:7:y:2018:i:8:p:133-:d:163313
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    References listed on IDEAS

    as
    1. Roger Lee Mendoza, 2010. "The Economics of Autism in Egypt," American Journal of Economics and Business Administration, Science Publications, vol. 2(1), pages 12-19, March.
    2. Valentina Iemmi & Karl Blanchet & Lorna J. Gibson & K. Suresh Kumar & Santosh Rath & Sally Hartley & Gudlavalleti V. S. Murthy & Vikram Patel & Joerg Weber & Hannah Kuper, 2016. "Community-based rehabilitation for people with physical and mental disabilities in low- and middle-income countries: a systematic review and meta-analysis," Journal of Development Effectiveness, Taylor & Francis Journals, vol. 8(3), pages 368-387, July.
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    Cited by:

    1. Xianmei Lei & Jiří Kantor, 2021. "Social Support and Family Functioning in Chinese Families of Children with Autism Spectrum Disorder," IJERPH, MDPI, vol. 18(7), pages 1-10, March.
    2. Rahel Fentahun Asmare & Fasil Nigussie Taye & Messay Gebremariam Kotecho & Faye Mishna & Cheryl Regehr, 2023. "Towards a “New Mothering” Practice? The Life Experiences of Mothers Raising a Child with Autism in Urban Ethiopia," IJERPH, MDPI, vol. 20(7), pages 1-14, March.
    3. Tekola, Bethlehem & Kinfe, Mersha & Girma, Fikirte & Hanlon, Charlotte & Hoekstra, Rosa A., 2020. "Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study," Social Science & Medicine, Elsevier, vol. 256(C).

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