IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v17y2020i17p6405-d408023.html
   My bibliography  Save this article

An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia—A Qualitative Study

Author

Listed:
  • Loujain Sharif

    (Department of Psychiatric and Mental Health Nursing, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia)

  • Shimaa Basri

    (Faculty of Nursing, King Abdulaziz University, Jeddah 21589, Saudi Arabia)

  • Fidaa Alsahafi

    (Faculty of Nursing, King Abdulaziz University, Jeddah 21589, Saudi Arabia)

  • Mashael Altaylouni

    (Faculty of Nursing, King Abdulaziz University, Jeddah 21589, Saudi Arabia)

  • Shihanah Albugumi

    (Faculty of Nursing, King Abdulaziz University, Jeddah 21589, Saudi Arabia)

  • Maram Banakhar

    (Department of Public Health Nursing, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia)

  • Alaa Mahsoon

    (Department of Public Health Nursing, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia)

  • Nofaa Alasmee

    (Department of Psychiatric and Mental Health Nursing, Faculty of Nursing, King Abdulaziz University, Jeddah 21551, Saudi Arabia)

  • Rebecca J. Wright

    (Johns Hopkins School of Nursing, Baltimore, MD 21205, USA)

Abstract

Family caregivers of people with mental disorders face a number of burdens and stressors, such as associative stigma and burnout. These burdens are often a result of their caring role coupled with insufficient support or ineffective coping strategies, which can affect their quality of life and biopsychosocial integrity that, in turn, may affect the care they provide. This study aimed to explore the experiences of family caregivers of people with mental disorders, through examining the burdens that they face and the coping strategies that they use. Using a descriptive qualitative approach, 13 semi-structured interviews were conducted with members of the Saudi public, recruited through popular social media platforms and analyzed using thematic analysis. Five main themes were constructed from the data: Type of care, Challenges, Coping and support, Perceptions of public awareness, and Messages to others. The findings emphasize the different types of burdens that caregivers experience, and their needs that require a range of responses such as educational training on effective coping strategies, and psychological support in the form of counseling or group therapy. This study highlights the voice of caregivers and their message to the public, in order to correct the misconceptions surrounding mental disorders and those associated with them.

Suggested Citation

  • Loujain Sharif & Shimaa Basri & Fidaa Alsahafi & Mashael Altaylouni & Shihanah Albugumi & Maram Banakhar & Alaa Mahsoon & Nofaa Alasmee & Rebecca J. Wright, 2020. "An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia—A Qualitative Study," IJERPH, MDPI, vol. 17(17), pages 1-15, September.
  • Handle: RePEc:gam:jijerp:v:17:y:2020:i:17:p:6405-:d:408023
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/17/17/6405/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/17/17/6405/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Chiu‐Yueh Hsiao & Yun‐Fang Tsai, 2015. "Factors of caregiver burden and family functioning among Taiwanese family caregivers living with schizophrenia," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(11-12), pages 1546-1556, June.
    2. Farnaz Rahmani & Hossein Ebrahimi & Naeimeh Seyedfatemi & Hossein Namdar Areshtanab & Fatemeh Ranjbar & Bill Whitehead, 2018. "Trapped like a butterfly in a spider's web: Experiences of female spousal caregivers in the care of husbands with severe mental illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1507-1518, April.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Yu Lei Jiang & Feng Yin & Zi Yao Lv & Hao Hou & Bing Xiang Yang & Qian Liu & Shi-Yu Fu & Jia-Ning Zhang & Xiao Qin Wang, 2024. "Effect of the Caregivers-to-Caregivers Training Programme on informed caregivers of persons with mental disorders: A pilot study," International Journal of Social Psychiatry, , vol. 70(2), pages 289-297, March.
    2. Chung-Ying Lin & Hector W. H. Tsang, 2020. "Stigma, Health and Well-Being," IJERPH, MDPI, vol. 17(20), pages 1-12, October.
    3. Robena Noorwali & Sarah Almotairy & Raneem Akhder & Ghadi Mahmoud & Loujain Sharif & Nofaa Alasmee & Alaa Mahsoon & Duaa Hafez, 2022. "Barriers and Facilitators to Mental Health Help-Seeking among Young Adults in Saudi Arabia: A Qualitative Study," IJERPH, MDPI, vol. 19(5), pages 1-11, March.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Yu Yu & Zi-wei Liu & Bing-wei Tang & Mei Zhao & Xi-guang Liu & Shui-yuan Xiao, 2017. "Reported family burden of schizophrenia patients in rural China," PLOS ONE, Public Library of Science, vol. 12(6), pages 1-18, June.
    2. José Manuel Pérez Mármol & María Luz Flores Antigüedad & Adelaida María Castro Sánchez & Rosa María Tapia Haro & María del Carmen García Ríos & María Encarnación Aguilar Ferrándiz, 2018. "Inpatient dependency in activities of daily living predicts informal caregiver strain: A cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(1-2), pages 177-185, January.
    3. Jose Manuel Tinoco-Camarena & Montserrat Puig-Llobet & María Teresa Lluch-Canut & Juan Roldan-Merino & Mari Carmen Moreno-Arroyo & Antonio Moreno-Poyato & Judith Balaguer-Sancho & Zaida Agüera & Maria, 2022. "Effectiveness of the Online “Dialogue Circles” Nursing Intervention to Increase Positive Mental Health and Reduce the Burden of Caregivers of Patients with Complex Chronic Conditions. Randomized Clini," IJERPH, MDPI, vol. 20(1), pages 1-13, December.
    4. Man-Man Peng & Jianli Xing & Xinfeng Tang & Qinglu Wu & Dannuo Wei & Mao-Sheng Ran, 2022. "Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis," IJERPH, MDPI, vol. 19(3), pages 1-16, February.
    5. Yu, Yu & Liu, Zi-Wei & Li, Tong-Xin & Li, Yi-Lu & Xiao, Shui-Yuan & Tebes, Jacob Kraemer, 2020. "Test of the stress process model of family caregivers of people living with schizophrenia in China," Social Science & Medicine, Elsevier, vol. 259(C).
    6. Mustafa Ozgun Atalay & Pınar Aydemir & Taner Acuner, 2022. "The Influence of Emotional Exhaustion on Organizational Cynicism: The Sequential Mediating Effect of Organizational Identification and Trust in Organization," SAGE Open, , vol. 12(2), pages 21582440221, April.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:17:y:2020:i:17:p:6405-:d:408023. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.