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Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities

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  • Leiter, Valerie

Abstract

This paper explores some of the dilemmas that result when mothers and professionals collaborate in providing care to young children with disabilities within a US public program called Early Intervention. Successful collaboration between professionals and activist parents resulted in the program having a "family centered" approach, but the implementation of that approach is problematic. Professionals transmit therapeutic knowledge and skills to mothers of young children with special needs, urging them to perform therapeutic care work with their children. Through these efforts, professionals create a "therapeutic imperative" for mothers, expecting them to do therapeutic work that usually exceeds the amount of work that professionals do with their children. This paper explores the dilemmas mothers and professionals face when implementing family centered care and the ways in which mothers and professionals negotiate contested understandings of the optimal mixture of public (professional) and private (maternal) provision of therapeutic care to young children with disabilities.

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  • Leiter, Valerie, 2004. "Dilemmas in sharing care: maternal provision of professionally driven therapy for children with disabilities," Social Science & Medicine, Elsevier, vol. 58(4), pages 837-849, February.
    • Handle: RePEc:eee:socmed:v:58:y:2004:i:4:p:837-849
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    Cited by:

    1. Timmermans, Stefan & Freidin, Betina, 2007. "Caretaking as articulation work: The effects of taking up responsibility for a child with asthma on labor force participation," Social Science & Medicine, Elsevier, vol. 65(7), pages 1351-1363, October.
    2. Leiter, Valerie, 2007. ""Nobody's just normal, you know": The social creation of developmental disability," Social Science & Medicine, Elsevier, vol. 65(8), pages 1630-1641, October.
    3. Hodgetts, Sandra & Nicholas, David & Zwaigenbaum, Lonnie & McConnell, David, 2013. "Parents' and professionals' perceptions of family-centered care for children with autism spectrum disorder across service sectors," Social Science & Medicine, Elsevier, vol. 96(C), pages 138-146.
    4. Laurie A. Drapela & Dana Lee Baker, 2014. "Policy Awareness, Financial Hardship, and Work Impact," SAGE Open, , vol. 4(3), pages 21582440145, September.
    5. Potter, Deborah Anne, 2010. "'Wrong parents' and 'right parents': Shared perspectives about citizen participation in policy implementation," Social Science & Medicine, Elsevier, vol. 70(11), pages 1705-1713, June.

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