IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v303y2022ics0277953622003276.html
   My bibliography  Save this article

Views on disability and prenatal testing among families with Down syndrome and disability activists: A comparative analysis of interviews from Germany and Israel

Author

Listed:
  • Nov-Klaiman, Tamar
  • Frisman, Marina
  • Raz, Aviad E.
  • Rehmann-Sutter, Christoph

Abstract

The prenatal genetic testing arena has witnessed great changes over the past decades and has been the focus of extensive discussion of its ethical, legal, and social implications. Germany and Israel were previously known for strongly contrasting regulations and attitudes of both professionals and laypeople towards genetic testing. Based on qualitative analysis of 37 semi-structured interviews, this study compares German and Israeli family members of individuals with Down syndrome and disability activists, thereby examining the interplay between lived experience and cultural scripts and their impact on the formation of personal views toward disability and prenatal testing. We have found that the differences between Germany and Israel remain, despite the emergence of new technologies, and that family members and disability activists reflect the norms of their socio-cultural environments, thereby emphasising the role society plays in shaping the views of those with direct experience of disability.

Suggested Citation

  • Nov-Klaiman, Tamar & Frisman, Marina & Raz, Aviad E. & Rehmann-Sutter, Christoph, 2022. "Views on disability and prenatal testing among families with Down syndrome and disability activists: A comparative analysis of interviews from Germany and Israel," Social Science & Medicine, Elsevier, vol. 303(C).
    • Handle: RePEc:eee:socmed:v:303:y:2022:i:c:s0277953622003276
    DOI: 10.1016/j.socscimed.2022.115021
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953622003276
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2022.115021?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Raz, Aviad, 2004. ""Important to test, important to support": attitudes toward disability rights and prenatal diagnosis among leaders of support groups for genetic disorders in Israel," Social Science & Medicine, Elsevier, vol. 59(9), pages 1857-1866, November.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Bryant, Louise D. & Green, Josephine M. & Hewison, Jenny, 2006. "Understandings of Down's syndrome: A Q methodological investigation," Social Science & Medicine, Elsevier, vol. 63(5), pages 1188-1200, September.
    2. Shim, Jae-Mahn & Kim, Jibum, 2020. "Contextualizing geneticization and medical pluralism: How variable institutionalization of traditional, complementary, and alternative medicine (TCAM) conditions effects of genetic beliefs on utilizat," Social Science & Medicine, Elsevier, vol. 267(C).
    3. Raz, Aviad E. & Vizner, Yafa, 2008. "Carrier matching and collective socialization in community genetics: Dor Yeshorim and the reinforcement of stigma," Social Science & Medicine, Elsevier, vol. 67(9), pages 1361-1369, November.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:303:y:2022:i:c:s0277953622003276. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.