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Managing type 1 diabetes in the context of work life: A matter of containment

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  • Hansen, Ulla Møller
  • Cleal, Bryan
  • Willaing, Ingrid
  • Tjørnhøj-Thomsen, Tine

Abstract

For people with type 1 diabetes, extensive tasks involved in diabetes self-management have a significant impact on overall care and quality of life. Members of the working population with type 1 diabetes spend one third of their time at work, yet little attention has been paid to challenges specific to balancing diabetes management and work life. Diabetes is associated with increased absenteeism and presenteeism, as well as disability retirement and lower lifetime income. These quantitative outcomes are corroborated by qualitative studies highlighting some of the challenges of reconciling diabetes self-management with work life. This qualitative study expands on previous research by examining illness behavior in work life using Alonzo's concept of containment. Forty in-depth interviews with Danish people with type 1 diabetes were conducted from May to December 2016 and analyzed using abductive reasoning. We found that working people with type 1 diabetes live in tension between competing logics linked to diabetes and to work life. We illustrate how diabetes management can be articulated as a matter of containment, which refers to the assemblage of practices and mental and emotional work required to keep diabetes at the level of a side-involvement and maintain proper situational involvement in work life. The containment framework illuminates and characterizes diabetes management in the context of work life and reveals a hidden burden of disease carried by working people with type 1 diabetes. Further research is needed to advance the theory of containment.

Suggested Citation

  • Hansen, Ulla Møller & Cleal, Bryan & Willaing, Ingrid & Tjørnhøj-Thomsen, Tine, 2018. "Managing type 1 diabetes in the context of work life: A matter of containment," Social Science & Medicine, Elsevier, vol. 219(C), pages 70-77.
    • Handle: RePEc:eee:socmed:v:219:y:2018:i:c:p:70-77
    DOI: 10.1016/j.socscimed.2018.10.016
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    References listed on IDEAS

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    1. Conrad, Peter, 1990. "Qualitative research on chronic illness: A commentary on method and conceptual development," Social Science & Medicine, Elsevier, vol. 30(11), pages 1257-1263, January.
    2. Campbell, Rona & Pound, Pandora & Pope, Catherine & Britten, Nicky & Pill, Roisin & Morgan, Myfanwy & Donovan, Jenny, 2003. "Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care," Social Science & Medicine, Elsevier, vol. 56(4), pages 671-684, February.
    3. Andersen, Rikke Sand & Paarup, Bjarke & Vedsted, Peter & Bro, Flemming & Soendergaard, Jens, 2010. "'Containment' as an analytical framework for understanding patient delay: A qualitative study of cancer patients' symptom interpretation processes," Social Science & Medicine, Elsevier, vol. 71(2), pages 378-385, July.
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    Cited by:

    1. Helle Johnsen & Ulla Christensen & Mette Juhl & Sarah Fredsted Villadsen, 2020. "Contextual Factors Influencing the MAMAACT Intervention: A Qualitative Study of Non-Western Immigrant Women’s Response to Potential Pregnancy Complications in Everyday Life," IJERPH, MDPI, vol. 17(3), pages 1-16, February.
    2. Raymond Hernandez & Stefan Schneider & Loree Pham & Elizabeth A. Pyatak, 2023. "Across and Within- Individual Associations Between Everyday Activities and Quality of Life Relevant Measures, in Workers with Type 1 Diabetes," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 18(4), pages 1965-1987, August.
    3. Mifsud, Matthieu & Molines, Mathieu & Cases, Anne-Sophie & N'Goala, Gilles, 2019. "It's MY health care program: Enhancing patient adherence through psychological ownership," Social Science & Medicine, Elsevier, vol. 232(C), pages 307-315.
    4. Pals, Regitze Anne Saurbrey & Hviid, Pernille & Cleal, Bryan & Grabowski, Dan, 2021. "Demanding devices – Living with diabetes devices as a pre-teen," Social Science & Medicine, Elsevier, vol. 286(C).

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