IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v182y2017icp73-80.html
   My bibliography  Save this article

Discredited legacy: Stigma and familial amyloid polyneuropathy in Northwestern Portugal

Author

Listed:
  • Mendes, Álvaro
  • Sousa, Liliana
  • Sequeiros, Jorge
  • Clarke, Angus

Abstract

Genetic inherited conditions may result in feelings of stigmatisation, mainly because of visible physical appearance and its transmissibility to offspring.

Suggested Citation

  • Mendes, Álvaro & Sousa, Liliana & Sequeiros, Jorge & Clarke, Angus, 2017. "Discredited legacy: Stigma and familial amyloid polyneuropathy in Northwestern Portugal," Social Science & Medicine, Elsevier, vol. 182(C), pages 73-80.
    • Handle: RePEc:eee:socmed:v:182:y:2017:i:c:p:73-80
    DOI: 10.1016/j.socscimed.2017.04.026
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953617302563
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2017.04.026?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Parker, Richard & Aggleton, Peter, 2003. "HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action," Social Science & Medicine, Elsevier, vol. 57(1), pages 13-24, July.
    2. Pescosolido, Bernice A. & Martin, Jack K. & Lang, Annie & Olafsdottir, Sigrun, 2008. "Rethinking theoretical approaches to stigma: A Framework Integrating Normative Influences on Stigma (FINIS)," Social Science & Medicine, Elsevier, vol. 67(3), pages 431-440, August.
    3. Clarke, Angus, 2016. "Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED)," Social Science & Medicine, Elsevier, vol. 158(C), pages 141-148.
    4. Whitley, Rob & Denise Campbell, Rosalyn, 2014. "Stigma, agency and recovery amongst people with severe mental illness," Social Science & Medicine, Elsevier, vol. 107(C), pages 1-8.
    5. Boardman, Felicity Kate, 2014. "The expressivist objection to prenatal testing: The experiences of families living with genetic disease," Social Science & Medicine, Elsevier, vol. 107(C), pages 18-25.
    6. Kenen, R.H. & Schmidt, R.M., 1978. "Stigmatization of carrier status: Social implications of heterozygote genetic screening programs," American Journal of Public Health, American Public Health Association, vol. 68(11), pages 1116-1120.
    7. Green, Sara E., 2003. ""What do you mean 'what's wrong with her?'": stigma and the lives of families of children with disabilities," Social Science & Medicine, Elsevier, vol. 57(8), pages 1361-1374, October.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Mariana Amorim & Susana Silva & Helena Machado & Elisa Leão Teles & Maria João Baptista & Tiago Maia & Ngozi Nwebonyi & Cláudia de Freitas, 2022. "Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals," IJERPH, MDPI, vol. 19(14), pages 1-16, July.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Timmermans, Stefan & Tietbohl, Caroline, 2018. "Fifty years of sociological leadership at Social Science and Medicine," Social Science & Medicine, Elsevier, vol. 196(C), pages 209-215.
    2. Clarke, Angus, 2016. "Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED)," Social Science & Medicine, Elsevier, vol. 158(C), pages 141-148.
    3. Keetie Roelen & Caroline Ackley & Paul Boyce & Nicolas Farina & Santiago Ripoll, 2020. "COVID-19 in LMICs: The Need to Place Stigma Front and Centre to Its Response," The European Journal of Development Research, Palgrave Macmillan;European Association of Development Research and Training Institutes (EADI), vol. 32(5), pages 1592-1612, December.
    4. Clair, Matthew & Daniel, Caitlin & Lamont, Michèle, 2016. "Destigmatization and health: Cultural constructions and the long-term reduction of stigma," Social Science & Medicine, Elsevier, vol. 165(C), pages 223-232.
    5. Jansen, Natalie Anne & Saint Onge, Jarron M., 2015. "An internet forum analysis of stigma power perceptions among women seeking fertility treatment in the United States," Social Science & Medicine, Elsevier, vol. 147(C), pages 184-189.
    6. Tenkorang, Eric Y., 2017. "Ebola-related stigma in Ghana: Individual and community level determinants," Social Science & Medicine, Elsevier, vol. 182(C), pages 142-149.
    7. Manago, Bianca & Davis, Jenny L. & Goar, Carla, 2017. "Discourse in Action: Parents’ use of medical and social models to resist disability stigma," Social Science & Medicine, Elsevier, vol. 184(C), pages 169-177.
    8. Bonnington, Oliver & Rose, Diana, 2014. "Exploring stigmatisation among people diagnosed with either bipolar disorder or borderline personality disorder: A critical realist analysis," Social Science & Medicine, Elsevier, vol. 123(C), pages 7-17.
    9. Cort, David A. & Tu, Hsin Fei, 2018. "Safety in stigmatizing? Instrumental stigma beliefs and protective sexual behavior in Sub-Saharan Africa," Social Science & Medicine, Elsevier, vol. 197(C), pages 144-152.
    10. Ryan, Martha S. & Nambiar, Devaki & Ferguson, Laura, 2019. "Sex work-related stigma: Experiential, symbolic and structural forms in the health systems of Delhi, India," Social Science & Medicine, Elsevier, vol. 228(C), pages 85-92.
    11. Mazanderani, Fadhila & Paparini, Sara, 2015. "The stories we tell: Qualitative research interviews, talking technologies and the ‘normalisation’ of life with HIV," Social Science & Medicine, Elsevier, vol. 131(C), pages 66-73.
    12. Chen Zhang & Xiaoming Li & Yu Liu & Shan Qiao & Liying Zhang & Yuejiao Zhou & Zhenzhu Tang & Zhiyong Shen & Yi Chen, 2016. "Stigma against People Living with HIV/AIDS in China: Does the Route of Infection Matter?," PLOS ONE, Public Library of Science, vol. 11(3), pages 1-15, March.
    13. Anton N Isaacs & Keith Sutton & Kim Dalziel & Darryl Maybery, 2017. "Outcomes of a care coordinated service model for persons with severe and persistent mental illness: A qualitative study," International Journal of Social Psychiatry, , vol. 63(1), pages 40-47, February.
    14. Mpho M. Pheko & Rapelang Chilisa & Shyngle K. Balogun & Christina Kgathi, 2013. "Predicting Intentions to Seek Psychological Help Among Botswana University Students," SAGE Open, , vol. 3(3), pages 21582440134, July.
    15. Winskell, Kate & Sabben, Gaëlle, 2016. "Sexual stigma and symbolic violence experienced, enacted, and counteracted in young Africans’ writing about same-sex attraction," Social Science & Medicine, Elsevier, vol. 161(C), pages 143-150.
    16. Rivers, Ian & Gonzalez, Cesar & Nodin, Nuno & Peel, Elizabeth & Tyler, Allan, 2018. "LGBT people and suicidality in youth: A qualitative study of perceptions of risk and protective circumstances," Social Science & Medicine, Elsevier, vol. 212(C), pages 1-8.
    17. Ida Viktoria Kolte & Lucia Pereira & Aparecida Benites & Islândia Maria Carvalho de Sousa & Paulo Cesar Basta, 2020. "The contribution of stigma to the transmission and treatment of tuberculosis in a hyperendemic indigenous population in Brazil," PLOS ONE, Public Library of Science, vol. 15(12), pages 1-13, December.
    18. Frederick, Angela, 2017. "Visibility, respectability, and disengagement: The everyday resistance of mothers with disabilities," Social Science & Medicine, Elsevier, vol. 181(C), pages 131-138.
    19. Yang, Lawrence Hsin & Kleinman, Arthur, 2008. "'Face' and the embodiment of stigma in China: The cases of schizophrenia and AIDS," Social Science & Medicine, Elsevier, vol. 67(3), pages 398-408, August.
    20. Yang, Lawrence H. & Chen, Fang-pei & Sia, Kathleen Janel & Lam, Jonathan & Lam, Katherine & Ngo, Hong & Lee, Sing & Kleinman, Arthur & Good, Byron, 2014. "“What matters most:” A cultural mechanism moderating structural vulnerability and moral experience of mental illness stigma," Social Science & Medicine, Elsevier, vol. 103(C), pages 84-93.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:182:y:2017:i:c:p:73-80. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.