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Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers

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  • Damon, Will
  • Callon, Cody
  • Wiebe, Lee
  • Small, Will
  • Kerr, Thomas
  • McNeil, Ryan

Abstract

Community-based participatory research (CBPR) has become an increasingly common approach to research involving people who use(d) drugs (PWUD), who are often employed as peer researchers on these projects. This paper seeks to understand the impact of CBPR on PWUD, particularly those living in heavily researched and stigmatized neighbourhoods where CBPR projects are often located. This study draws on 14 in-depth interviews with PWUD who had previous experience as both peer researchers and research participants in CBPR projects conducted between July 2010 and February 2011. The study employed a CBPR approach in its study design, recruitment, interviewing, and analysis. Our analysis indicates that participants were supportive of CBPR in principle and described the ways in which it helped contest stigmatizing assumptions and researcher bias. Participants also reported positive personal gains from participation in CBPR projects. However, many participants had negative experiences with CBPR projects, especially when CBPR principles were implemented in a superficial or incomplete manner. Participants emphasized the importance of inclusiveness and active deconstruction of hierarchy between researchers and community members to successful CBPR among drug using populations. CBPR has been widely adopted as a research approach within marginalized communities but has often been implemented inconsistently. Still, CBPR can empower communities to contest forms of social stigma that are often reproduced through academic research on marginalized communities. Our findings describe how the benefits of CBPR are maximized when CBPR principles are consistently applied and when community-based researchers are supported in ways that reduce power hierarchies. This suggests a need for capacity building within affected communities to develop independent support, training, and grievance processes for peer researchers.

Suggested Citation

  • Damon, Will & Callon, Cody & Wiebe, Lee & Small, Will & Kerr, Thomas & McNeil, Ryan, 2017. "Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers," Social Science & Medicine, Elsevier, vol. 176(C), pages 85-92.
    • Handle: RePEc:eee:socmed:v:176:y:2017:i:c:p:85-92
    DOI: 10.1016/j.socscimed.2017.01.027
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    References listed on IDEAS

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    1. Guta, Adrian & Strike, Carol & Flicker, Sarah & J. Murray, Stuart & Upshur, Ross & Myers, Ted, 2014. "Governing through community-based research: Lessons from the Canadian HIV research sector," Social Science & Medicine, Elsevier, vol. 123(C), pages 250-261.
    2. Hatzenbuehler, M.L. & Phelan, J.C. & Link, B.G., 2013. "Stigma as a fundamental cause of population health inequalities," American Journal of Public Health, American Public Health Association, vol. 103(5), pages 813-821.
    3. Parker, Richard & Aggleton, Peter, 2003. "HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action," Social Science & Medicine, Elsevier, vol. 57(1), pages 13-24, July.
    4. Cohen, D.A. & Mason, K. & Bedimo, A. & Scribner, R. & Basolo, V. & Farley, T.A., 2003. "Neighborhood physical conditions and health," American Journal of Public Health, American Public Health Association, vol. 93(3), pages 467-471.
    5. Loïc Wacquant & Tom Slater & Virgílio Borges Pereira, 2014. "Territorial Stigmatization in Action," Environment and Planning A, , vol. 46(6), pages 1270-1280, June.
    6. Takahashi, Lois M., 1997. "The socio-spatial stigmatization of homelessness and HIV/AIDS: Toward an explanation of the NIMBY syndrome," Social Science & Medicine, Elsevier, vol. 45(6), pages 903-914, September.
    7. Loïc Wacquant, 2016. "Revisiting territories of relegation: Class, ethnicity and state in the making of advanced marginality," Urban Studies, Urban Studies Journal Limited, vol. 53(6), pages 1077-1088, May.
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    2. Fleming, Taylor & Collins, Alexandra B. & Boyd, Jade & Knight, Kelly R. & McNeil, Ryan, 2023. "“It's no foundation, there's no stabilization, you're just scattered”: A qualitative study of the institutional circuit of recently-evicted people who use drugs," Social Science & Medicine, Elsevier, vol. 324(C).
    3. Bradbury-Jones, Caroline & Isham, Louise & Taylor, Julie, 2018. "The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review," Social Science & Medicine, Elsevier, vol. 215(C), pages 80-91.
    4. Miewald, Christiana & McCann, Eugene & Temenos, Cristina & McIntosh, Alison, 2019. "“I do my best to eat while I'm using”: Mapping the foodscapes of people living with HIV/AIDS who use drugs," Social Science & Medicine, Elsevier, vol. 226(C), pages 96-103.
    5. Amy E. Lesen & Chloe Tucker & M. G. Olson & Regardt J. Ferreira, 2019. "‘Come Back at Us’: Reflections on Researcher-Community Partnerships during a Post-Oil Spill Gulf Coast Resilience Study," Social Sciences, MDPI, vol. 8(1), pages 1-26, January.

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