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Consumer involvement in health research: a review and research agenda

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  • Boote, Jonathan
  • Telford, Rosemary
  • Cooper, Cindy

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  • Boote, Jonathan & Telford, Rosemary & Cooper, Cindy, 2002. "Consumer involvement in health research: a review and research agenda," Health Policy, Elsevier, vol. 61(2), pages 213-236, August.
    • Handle: RePEc:eee:hepoli:v:61:y:2002:i:2:p:213-236
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    Cited by:

    1. Goven, Joanna, 2008. "Assessing genetic testing: Who are the "lay experts"?," Health Policy, Elsevier, vol. 85(1), pages 1-18, January.
    2. Elberse, Janneke Elisabeth & Pittens, Carina Anna Cornelia Maria & de Cock Buning, Tjard & Broerse, Jacqueline Elisabeth Willy, 2012. "Patient involvement in a scientific advisory process: Setting the research agenda for medical products," Health Policy, Elsevier, vol. 107(2), pages 231-242.
    3. Augustine Adomah-Afari & Theophilus Maloreh-Nyamekye, 2019. "Enhancing Patient Satisfaction - Relationship Marketing Strategies of Two Specialist Hospitals in Accra, Ghana," International Journal of Social and Administrative Sciences, Asian Economic and Social Society, vol. 4(2), pages 213-231, June.
    4. Morrison, Cecily & Dearden, Andy, 2013. "Beyond tokenistic participation: Using representational artefacts to enable meaningful public participation in health service design," Health Policy, Elsevier, vol. 112(3), pages 179-186.
    5. Kathryn Oliver & Warren Pearce, 2017. "Three lessons from evidence-based medicine and policy: increase transparency, balance inputs and understand power," Palgrave Communications, Palgrave Macmillan, vol. 3(1), pages 1-7, December.
    6. O'Donnell, Maire & Entwistle, Vikki, 2004. "Consumer involvement in decisions about what health-related research is funded," Health Policy, Elsevier, vol. 70(3), pages 281-290, December.
    7. Serrano-Aguilar, P. & Trujillo-Martín, M.M. & Ramos-Goñi, J.M. & Mahtani-Chugani, V. & Perestelo-Pérez, L. & Posada-de la Paz, M., 2009. "Patient involvement in health research: A contribution to a systematic review on the effectiveness of treatments for degenerative ataxias," Social Science & Medicine, Elsevier, vol. 69(6), pages 920-925, September.
    8. Pivik, Jayne & Rode, Elisabeth & Ward, Christopher, 2004. "A consumer involvement model for health technology assessment in Canada," Health Policy, Elsevier, vol. 69(2), pages 253-268, August.
    9. Marika Burda & Frans Horst & Marjan Akker & Alexander Stork & Ilse Mesters & Silvia Bours & Maarten Ploeg & Bjorn Winkens & Johannes Knottnerus, 2012. "Harvesting Experiential Expertise to Support Safe Driving for People with Diabetes Mellitus," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 5(4), pages 251-264, December.
    10. Meng, Jie & Layton, Roger & Huang, Yimin, 2016. "Why do some consumers shop in this pharmacy? A cross-check of vulnerable characteristics and store types," Journal of Retailing and Consumer Services, Elsevier, vol. 30(C), pages 116-130.
    11. Joan Carlini & Rachel Muir & Annette McLaren-Kennedy & Laurie Grealish, 2023. "Researcher Perceptions of Involving Consumers in Health Research in Australia: A Qualitative Study," IJERPH, MDPI, vol. 20(10), pages 1-16, May.
    12. Ann Marie Crosse & Margaret M. Barry & Mary Jo Lavelle & Jane Sixsmith, 2021. "Bridging Knowledge Systems: A Community-Participatory Approach to EcoHealth," IJERPH, MDPI, vol. 18(23), pages 1-16, November.
    13. Ahmed Rashid & Victoria Thomas & Toni Shaw & Gillian Leng, 2017. "Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(3), pages 277-282, June.
    14. Boote, Jonathan & Barber, Rosemary & Cooper, Cindy, 2006. "Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis," Health Policy, Elsevier, vol. 75(3), pages 280-297, February.
    15. Bullinger, Angelika C. & Rass, Matthias & Adamczyk, Sabrina & Moeslein, Kathrin M. & Sohn, Stefan, 2012. "Open innovation in health care: Analysis of an open health platform," Health Policy, Elsevier, vol. 105(2), pages 165-175.
    16. Bukola Mary Ibitoye & Bernie Garrett & Manon Ranger & Jennifer Stinson, 2023. "Conducting Patient-Oriented Research in Low-Income and Middle-Income Countries: A Scoping Review," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 16(1), pages 19-29, January.
    17. Caron-Flinterman, J. Francisca & Broerse, Jacqueline E.W. & Bunders, Joske F.G., 2005. "The experiential knowledge of patients: a new resource for biomedical research?," Social Science & Medicine, Elsevier, vol. 60(11), pages 2575-2584, June.
    18. Boote, Jonathan & Baird, Wendy & Sutton, Anthea, 2011. "Public involvement in the systematic review process in health and social care: A narrative review of case examples," Health Policy, Elsevier, vol. 102(2), pages 105-116.
    19. Sandy Oliver & David Armes & Gill Gyte, 2009. "Public Involvement in Setting a National Research Agenda," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 2(3), pages 179-190, September.
    20. Noerreslet, Mikkel & Larsen, Jakob B. & Traulsen, Janine M., 2005. "The medicine user--Lost in translation?: Analysis of the official political debate prior to the deregulation of the Danish medicine distribution system," Social Science & Medicine, Elsevier, vol. 61(8), pages 1733-1740, October.
    21. Parkes, Jacqueline H. & Pyer, Michelle & Wray, Paula & Taylor, Jane, 2014. "Partners in projects: Preparing for public involvement in health and social care research," Health Policy, Elsevier, vol. 117(3), pages 399-408.
    22. Imke Schilling & Ansgar Gerhardus, 2017. "Methods for Involving Older People in Health Research—A Review of the Literature," IJERPH, MDPI, vol. 14(12), pages 1-20, November.
    23. Boote, Jonathan & Baird, Wendy & Beecroft, Claire, 2010. "Public involvement at the design stage of primary health research: A narrative review of case examples," Health Policy, Elsevier, vol. 95(1), pages 10-23, April.
    24. Heather J. Bray & Jennifer Stone & Lillith Litchfield & Kara L. Britt & John L. Hopper & Wendy V. Ingman, 2022. "Together Alone: Going Online during COVID-19 Is Changing Scientific Conferences," Challenges, MDPI, vol. 13(1), pages 1-13, February.
    25. Jane McKeown & Amanda Clarke & Christine Ingleton & Julie Repper, 2010. "Actively involving people with dementia in qualitative research," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(13‐14), pages 1935-1943, July.

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