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The role of community advisory boards: Involving communities in the informed consent process

Author

Listed:
  • Strauss, R.P.
  • Sengupta, S.
  • Quinn, S.C.
  • Goeppinger, J.
  • Spaulding, C.
  • Kegeles, S.M.
  • Millett, G.

Abstract

Ethical research involving human subjects mandates that individual informed consent be obtained from research participants or from surrogates when participants are not able to consent for themselves. The existing requirements for informed consent assume that all study participants have personal autonomy; fully comprehend the purpose, risks, and benefits of the research; and volunteer for projects that disclose all relevant information. Yet contemporary examples of lapses in the individual informed consent process have been reported. The authors propose the use of community advisory boards, which can facilitate research by providing advice about the informed consent process and the design and implementation of research protocols. These activities could help reduce the number of individual informed consent lapses, benefiting study participants and the scientific integrity of the research in question.

Suggested Citation

  • Strauss, R.P. & Sengupta, S. & Quinn, S.C. & Goeppinger, J. & Spaulding, C. & Kegeles, S.M. & Millett, G., 2001. "The role of community advisory boards: Involving communities in the informed consent process," American Journal of Public Health, American Public Health Association, vol. 91(12), pages 1938-1943.
    • Handle: RePEc:aph:ajpbhl:2001:91:12:1938-1943_3
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    Cited by:

    1. Marsh, Vicki & Kamuya, Dorcas & Rowa, Yvonne & Gikonyo, Caroline & Molyneux, Sassy, 2008. "Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya," Social Science & Medicine, Elsevier, vol. 67(5), pages 721-733, September.
    2. Ntshanga, Sbongile P. & Ngcobo, Paulos S. & Mabaso, Musawenkosi L.H., 2010. "Establishment of a Community Advisory Board (CAB) for tuberculosis control and research in the Inanda, Ntuzuma and KwaMashu (INK) area of KwaZulu-Natal, South Africa," Health Policy, Elsevier, vol. 95(2-3), pages 211-215, May.
    3. J. Michael Oakes, 2002. "Risks and Wrongs in Social Science Research," Evaluation Review, , vol. 26(5), pages 443-479, October.
    4. Small, Will & Maher, Lisa & Kerr, Thomas, 2014. "Institutional ethical review and ethnographic research involving injection drug users: A case study," Social Science & Medicine, Elsevier, vol. 104(C), pages 157-162.

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