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Ethical goals of community consultation in research

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  • Dickert, N.
  • Sugarman, J.

Abstract

In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention focused on the importance of involving communities in research development and approval. Community consultation is a particularly common method of involving communities. However, the fundamental ethical goals of community consultation have not been delineated, which makes it difficult for investigators, sponsors, and institutional review boards to design and evaluate consultation efforts. Community consultation must be tailored to the communities in which it is conducted, but the purposes of consultation-the ethical goals it is designed to achieve-should be universal. We propose 4 ethical goals that give investigators, sponsors, institutional review boards, and communities a framework for evaluating community consultation processes.

Suggested Citation

  • Dickert, N. & Sugarman, J., 2005. "Ethical goals of community consultation in research," American Journal of Public Health, American Public Health Association, vol. 95(7), pages 1123-1127.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2004.058933_3
    DOI: 10.2105/AJPH.2004.058933
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    1. Eleni Zika & Daniele Paci & Tobias Schulte in den Bäumen & Anette Braun & Silvie RijKers-Defrasne & Mylène Deschênes & Isabel Fortier & Jens Laage-Hellman & Christian A. Scerri & Dolores Ibarreta, 2010. "Biobanks in Europe: Prospects for Harmonisation and Networking," JRC Research Reports JRC57831, Joint Research Centre.
    2. Marsh, Vicki & Kamuya, Dorcas & Rowa, Yvonne & Gikonyo, Caroline & Molyneux, Sassy, 2008. "Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya," Social Science & Medicine, Elsevier, vol. 67(5), pages 721-733, September.
    3. Debbie Haski-Leventhal & Mehrdokht Pournader & Andrew McKinnon, 2017. "The Role of Gender and Age in Business Students’ Values, CSR Attitudes, and Responsible Management Education: Learnings from the PRME International Survey," Journal of Business Ethics, Springer, vol. 146(1), pages 219-239, November.

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