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Transgresser pour mettre en œuvre le droit d'accéder à une vie ordinaire

Author

Listed:
  • Anne-Charlotte Taillandier

    (LEM - Lille économie management - UMR 9221 - UA - Université d'Artois - UCL - Université catholique de Lille - Université de Lille - CNRS - Centre National de la Recherche Scientifique)

Abstract

Accompagner de la naissance à l'âge adulte des personnes trisomiques requiert beaucoup de courage, de réflexion et d'actions. Pour faire vivre "en milieu ordinaire" leur enfant déficient, des parents sont conduits à créer des liens et nouer des partenariats, expliquer, négocier des amodiations et/ou adaptations mais certaines difficultés induisent des transgressions pour compenser, dépasser à la fois inaptitudes et incompréhensions, voire incompétences et contrer des normes, méthodes et comportements. Transgressing to Implement One's Right to Ordinary Life Abstract: Caring for a person with Down syndrome from birth to adulthood requires a lot of courage, thoughts and actions. In order to allow their challenged children to live in a "regular environment", some parents are led to create alliances and partnerships, to explain, negotiate accommodations and/or adaptations, but some obstacles introduce transgressions meant to compensate, overcome misunderstandings and shortcomings, even incompetence, while confronting norms, methods and behaviors.

Suggested Citation

  • Anne-Charlotte Taillandier, 2015. "Transgresser pour mettre en œuvre le droit d'accéder à une vie ordinaire," Post-Print hal-03001712, HAL.
    • Handle: RePEc:hal:journl:hal-03001712
    DOI: 10.26522/vp.v12i2.1287
    as

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