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Patient-Reported Outcomes, Patient-Reported Information

Author

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  • Mike Baldwin
  • Andrew Spong
  • Lynda Doward
  • Ari Gnanasakthy

Abstract

Internet communication is developing. Social networking sites enable patients to publish and receive communications very easily. Many stakeholders, including patients, are using these media to find new ways to make sense of diseases, to find and discuss treatments, and to give support to patients and their caregivers. We argue for a new definition of patient-reported information (PRI), which differs from the usual patient-reported outcomes (PRO). These new emergent data from the social web have important implications for decision making, at both an individual and a population level. We discuss new emergent technologies that will help aggregate this information and discuss how this will be assessed alongside the use of PROs in randomized controlled trials and how these new emergent data will be one facet of changing the relationship between the various stakeholders in achieving better co-created health. Copyright Adis Data Information BV 2011

Suggested Citation

  • Mike Baldwin & Andrew Spong & Lynda Doward & Ari Gnanasakthy, 2011. "Patient-Reported Outcomes, Patient-Reported Information," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 4(1), pages 11-17, January.
    • Handle: RePEc:spr:patien:v:4:y:2011:i:1:p:11-17
    DOI: 10.2165/11585530-000000000-00000
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    Cited by:

    1. Min Yang & Mark Kosinski & Rosemarie Boulanger, 2011. "A Qualitative Study on Feasibility of a Web-Based Women’s Health Portal and Information System," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 4(1), pages 67-68, January.

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