IDEAS home Printed from https://ideas.repec.org/a/spr/patien/v11y2018i3d10.1007_s40271-017-0294-0.html
   My bibliography  Save this article

Factors that Influence Treatment and Non-treatment Decision Making Among Individuals with Inflammatory Bowel Disease: An Integrative Review

Author

Listed:
  • Kendra J. Kamp

    (Michigan State University)

  • Kelly Brittain

    (Michigan State University)

Abstract

Inflammatory bowel disease (IBD) is a chronic illness with periods of varying disease activity called flares and remissions. Since IBD impacts quality of life, patients make IBD disease management decisions every day. Previous research indicates limited insight about factors that influence decisions regarding disease management and the types of decisions IBD patients make. The purpose of this integrative review is to identify types of treatment and non-treatment decisions and the factors that influence decision making regarding disease management among individuals with IBD. An integrative literature review was performed based on the Whittemore and Knafl framework. PubMed, Web of Science, and PsychINFO were searched for relevant articles, from 2010–2016, using the key terms: decision making, patient preferences, self-management, self-care, nutrition, diet, stress, symptom, Colitis, Crohns, and IBD. Twenty-eight articles met the inclusion criteria. From these, research showed two types of decisions: treatment decisions related to medication and surgery, and non-treatment decisions focused on diet modification. Five themes that influence decisions were identified: experiencing symptoms, provider recommendations, convenience attributes, psychosocial factors, and informational needs. Most of the studies found a positive relationship between an increased number of symptoms and a patient’s willingness to engage in treatment decisions. Although support from providers is highly influential for treatment decisions, most studies reported that provider recommendations did not align with patient preferences. Future work is needed to understand factors that influence decisions among recently diagnosed patients, to focus on non-treatment-related decisions, and to clarify the role of psychosocial factors in promoting disease decision making among IBD patients. This integrative review identified that, for patients, experiencing symptoms is the most important factor that influences treatment and non-treatment decisions.

Suggested Citation

  • Kendra J. Kamp & Kelly Brittain, 2018. "Factors that Influence Treatment and Non-treatment Decision Making Among Individuals with Inflammatory Bowel Disease: An Integrative Review," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(3), pages 271-284, June.
    • Handle: RePEc:spr:patien:v:11:y:2018:i:3:d:10.1007_s40271-017-0294-0
    DOI: 10.1007/s40271-017-0294-0
    as

    Download full text from publisher

    File URL: http://link.springer.com/10.1007/s40271-017-0294-0
    File Function: Abstract
    Download Restriction: Access to the full text of the articles in this series is restricted.
    File URL: https://libkey.io/10.1007/s40271-017-0294-0?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Axel Mühlbacher & Christin Juhnke, 2013. "Patient Preferences Versus Physicians’ Judgement: Does it Make a Difference in Healthcare Decision Making?," Applied Health Economics and Health Policy, Springer, vol. 11(3), pages 163-180, June.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Laurent Frossard & Gregory Merlo & Tanya Quincey & Brendan Burkett & Debra Berg, 2017. "Development of a Procedure for the Government Provision of Bone-Anchored Prosthesis Using Osseointegration in Australia," PharmacoEconomics - Open, Springer, vol. 1(4), pages 301-314, December.
    2. Axel C. Mühlbacher & Andrew Sadler & Franz-Werner Dippel & Christin Juhnke, 2018. "Treatment Preferences in Germany Differ Among Apheresis Patients with Severe Hypercholesterolemia," PharmacoEconomics, Springer, vol. 36(4), pages 477-493, April.
    3. Severin, Franziska & Hess, Wolfgang & Schmidtke, Jörg & Mühlbacher, Axel & Rogowski, Wolf, 2015. "Value judgments for priority setting criteria in genetic testing: A discrete choice experiment," Health Policy, Elsevier, vol. 119(2), pages 164-173.
    4. Lill-Brith Arx & Trine Kjær, 2014. "The Patient Perspective of Diabetes Care: A Systematic Review of Stated Preference Research," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 7(3), pages 283-300, September.
    5. Axel Mühlbacher & Uwe Junker & Christin Juhnke & Edgar Stemmler & Thomas Kohlmann & Friedhelm Leverkus & Matthias Nübling, 2015. "Chronic pain patients’ treatment preferences: a discrete-choice experiment," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 16(6), pages 613-628, July.
    6. Do Hwa Byun & Rho Soon Chang & Myung-Bae Park & Hyo-Rim Son & Chun-Bae Kim, 2021. "Prioritizing Community-Based Intervention Programs for Improving Treatment Compliance of Patients with Chronic Diseases: Applying an Analytic Hierarchy Process," IJERPH, MDPI, vol. 18(2), pages 1-20, January.
    7. Yi Qian & Jorge Arellano & A. Brett Hauber & Ateesha F. Mohamed & Juan Marcos Gonzalez & Guy Hechmati & Francesca Gatta & Stacey Harrelson & Cynthia Campbell-Baird, 2016. "Patient, Caregiver, and Nurse Preferences for Treatments for Bone Metastases from Solid Tumors," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 9(4), pages 323-333, August.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:patien:v:11:y:2018:i:3:d:10.1007_s40271-017-0294-0. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.