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Decisional Regret in Long-Term Australian Allogeneic Hematopoietic Stem Cell Transplantation Survivors: A Cross-Sectional Survey

Author

Listed:
  • Gemma McErlean
  • Caley Tapp
  • Lisa Brice
  • Anisha Pradhan
  • Nicole Gilroy
  • Masura Kabir
  • Matt Greenwood
  • Stephen R Larsen
  • John Moore
  • David Gottlieb
  • Mark Hertzberg
  • Louisa Brown
  • Megan Hogg
  • Gillian Huang
  • Christopher Ward
  • Ian Kerridge

Abstract

Allogeneic hematopoietic stem cell transplantation (allo-HSCT) is an intensive but effective treatment for malignant and non-malignant diseases. However, long-term survival often comes at a cost, with survivors experiencing chronic morbidity and are at risk of relapse and secondary malignancy. This study aimed to describe decisional regret in a large cohort of Australian long-term allo-HSCT survivors. A cross-sectional survey was conducted with 441 adults in New South Wales, assessing quality of life (QoL), psychological, social, demographic, and clinical variables. Less than 10% of survivors expressed regret, with chronic graft-versus-host disease being the most important clinical factor. Psycho-socioeconomic factors such as depression, lower QoL scores, lower household income, higher treatment burden, and not resuming sex post-HSCT were also associated with regret. Findings highlight the need for valid informed consent and ongoing follow-up and support for allo-HSCT survivors dealing with life post-transplant. Nurses and healthcare professionals play a critical role in addressing decisional regret in these patients.

Suggested Citation

  • Gemma McErlean & Caley Tapp & Lisa Brice & Anisha Pradhan & Nicole Gilroy & Masura Kabir & Matt Greenwood & Stephen R Larsen & John Moore & David Gottlieb & Mark Hertzberg & Louisa Brown & Megan Hogg , 2023. "Decisional Regret in Long-Term Australian Allogeneic Hematopoietic Stem Cell Transplantation Survivors: A Cross-Sectional Survey," Clinical Nursing Research, , vol. 32(8), pages 1134-1144, November.
    • Handle: RePEc:sae:clnure:v:32:y:2023:i:8:p:1134-1144
    DOI: 10.1177/10547738231180337
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    References listed on IDEAS

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    1. Maria Margarita Becerra Pérez & Matthew Menear & Jamie C. Brehaut & France Légaré, 2016. "Extent and Predictors of Decision Regret about Health Care Decisions," Medical Decision Making, , vol. 36(6), pages 777-790, August.
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