IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v21y2024i5p530-d1382484.html
   My bibliography  Save this article

A Mixed-Methods Evaluation of a Project ECHO Program for the Evidence-Based Management of Sickle Cell Disease

Author

Listed:
  • Cami Mosley

    (Cincinnati Comprehensive Sickle Cell Center, Division of Hematology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA)

  • Christina Bennett Farrell

    (Cincinnati Comprehensive Sickle Cell Center, Division of Hematology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA)

  • Charles T. Quinn

    (Cincinnati Comprehensive Sickle Cell Center, Division of Hematology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA
    Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH 45229, USA)

  • Lisa Marie Shook

    (Cincinnati Comprehensive Sickle Cell Center, Division of Hematology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA
    Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH 45229, USA)

Abstract

Sickle cell disease (SCD) is a group of chronic, genetic disorders of the red blood cells with significant gaps in access to evidence-based clinical care. Sickle Treatment and Outcomes Research in the Midwest (STORM), a provider network, utilized Project ECHO (Extension for Community Health Outcomes), a telementoring model, to deliver evidence-based education about SCD management. The purpose of this mixed-methods study is to evaluate the utility of Project ECHO as an educational strategy for healthcare providers treating children and adults with SCD. Annual evaluations were administered to STORM TeleECHO participants from 2016 to 2021. Survey data showed a statistically significant change in self-reported provider confidence in the ability to provide care for adult patients with SCD; identify suitable candidates for disease-modifying therapies; and confidence to prescribe disease-modifying therapies. Participants who attended at least 10 sessions were invited to participate in a semi-structured interview. Qualitative data were analyzed using thematic analysis and several themes emerged about the benefits, including (1) increased confidence, (2) integrated best-practice care, (3) connection to provider network and access to experts, (4) high-quality educational presentations and (5) opportunities for collaboration and a sense of community. This suggests that Project ECHO is accessible and leads to increased confidence in providers caring for individuals with SCD. Overall, participant knowledge gains successfully demonstrated the utility of Project ECHO as an educational resource for providers.

Suggested Citation

  • Cami Mosley & Christina Bennett Farrell & Charles T. Quinn & Lisa Marie Shook, 2024. "A Mixed-Methods Evaluation of a Project ECHO Program for the Evidence-Based Management of Sickle Cell Disease," IJERPH, MDPI, vol. 21(5), pages 1-10, April.
  • Handle: RePEc:gam:jijerp:v:21:y:2024:i:5:p:530-:d:1382484
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/21/5/530/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/21/5/530/
    Download Restriction: no
    ---><---

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:21:y:2024:i:5:p:530-:d:1382484. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.