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Scientific Value of the Sub-Cohort of Children in the World Trade Center Health Registry

Author

Listed:
  • Robert M. Brackbill

    (World Trade Center Health Registry, Division of Epidemiology, New York City Department of Health and Mental Hygiene, New York, NY 11101, USA)

  • Emma Butturini

    (World Trade Center Health Program Division, National Institute for Occupational Safety and Health, U.S. Centers for Disease Control and Prevention, Atlanta, GA 30329, USA)

  • James E. Cone

    (World Trade Center Health Registry, Division of Epidemiology, New York City Department of Health and Mental Hygiene, New York, NY 11101, USA)

  • Ayda Ahmadi

    (World Trade Center Health Registry, Division of Epidemiology, New York City Department of Health and Mental Hygiene, New York, NY 11101, USA)

  • Robert D. Daniels

    (World Trade Center Health Program Division, National Institute for Occupational Safety and Health, U.S. Centers for Disease Control and Prevention, Atlanta, GA 30329, USA)

  • Mark R. Farfel

    (World Trade Center Health Registry, Division of Epidemiology, New York City Department of Health and Mental Hygiene, New York, NY 11101, USA)

  • Travis Kubale

    (World Trade Center Health Program Division, National Institute for Occupational Safety and Health, U.S. Centers for Disease Control and Prevention, Atlanta, GA 30329, USA)

Abstract

The World Trade Center Health Registry (WTCHR) was established in 2002 as a public health resource to monitor the health effects from the World Trade Center (WTC) disaster. We evaluated the representativeness of the WTC youth population (<18 years on 11 September 2001) by comparing the distributions of age, gender, race/ethnic groups, and income to 2000 census data for the matched geographic area, including distance from disaster. There were 2379 WTCHR enrolled children living in Lower Manhattan south of Canal Street on 11 September 2001, along with 752 enrolled students who attended school in Lower Manhattan but were not area residents. The WTCHR sub-group of children who were residents was similar to the geographically corresponding census population on age and sex. Black and Hispanic children are moderately overrepresented at 0.9% and 2.4% in the WTCHR compared to 0.8% and 1.7% in census population, respectively, while lower-income households are slightly under-represented, 28.8% in the WTCHR and 30.8% for the corresponding census information. Asian children appear underrepresented at 3.0% participation compared to 6.3% in the census. While the demographics of WTCHR youth are somewhat skewed, the gaps are within expected patterns of under-representation observed in other longitudinal cohorts and can be effectively addressed analytically or through targeted study design.

Suggested Citation

  • Robert M. Brackbill & Emma Butturini & James E. Cone & Ayda Ahmadi & Robert D. Daniels & Mark R. Farfel & Travis Kubale, 2022. "Scientific Value of the Sub-Cohort of Children in the World Trade Center Health Registry," IJERPH, MDPI, vol. 19(19), pages 1-15, September.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:19:p:12461-:d:929862
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    References listed on IDEAS

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    1. Albeliz Santiago-Colón & Robert Daniels & Dori Reissman & Kristi Anderson & Geoffrey Calvert & Alexis Caplan & Tania Carreón & Alan Katruska & Travis Kubale & Ruiling Liu & Rhonda Nembhard & W. Allen , 2020. "World Trade Center Health Program: First Decade of Research," IJERPH, MDPI, vol. 17(19), pages 1-25, October.
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