Developing a Specialist Patient Program for Migraine
This review outlines a migraine-specific specialist patient program developed by the UK Migraine Action Association (MAA) for delivery to groups of patients with migraine throughout England and Wales. The program, which began in 2004, will deliver courses to 36 groups of 20 patients over 3 years. This paper reports the development of the program and the evaluation of the first six courses. The program enables participants to manage their migraine more effectively and educates them to provide information and support to other patients with migraine. Each course is open to 20 migraine patients aged between 18 and 70 years who fulfill the International Headache Society definition of migraine with or without aura. To develop the specialist migraine program, MAA staff researched the literature regarding the term `expert/specialist patients,' which patients are invited to become after completing the program. MAA staff also consulted with experts in the field and organizations involved in delivering expert patient programs. Each course is delivered by a health professional, usually a general practitioner who is a local member of Migraine in Primary Care Advisors, and two lay trainers from the MAA. Results to date have shown that the majority of participants in the program now feel that they understand their condition better and are able to control it more effectively. Thirty-four percent of participants have agreed to become specialist patients within their own community. The program has succeeded in raising awareness of migraine in the areas visited, educating patients, and creating local networks of support for patients with migraine in these areas, which will complement and be supported by the services already provided by the MAA.
If you experience problems downloading a file, check if you have the proper application to view it first. In case of further problems read the IDEAS help page. Note that these files are not on the IDEAS site. Please be patient as the files may be large.
As the access to this document is restricted, you may want to look for a different version under "Related research" (further below) or search for a different version of it.
When requesting a correction, please mention this item's handle: RePEc:wkh:dmhout:v:14:y:2006:i:4:p:215-221. See general information about how to correct material in RePEc.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (Dave Dustin)
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If references are entirely missing, you can add them using this form.
If the full references list an item that is present in RePEc, but the system did not link to it, you can help with this form.
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your profile, as there may be some citations waiting for confirmation.
Please note that corrections may take a couple of weeks to filter through the various RePEc services.