A qualitative study exploring the general population’s perception of rheumatoid arthritis after being informed about disease adaptation
AbstractPurpose: This study aimed to gain an understanding of what factors induce individuals to alter their opinions about a health condition after being informed about disease adaptation and being given time to reflect and deliberate on this information. Rheumatoid arthritis (RA) states are used as an illustration. Methods: Semi-structured interviews were conducted with 12 members of the general population. They completed two time trade-off exercises for three RA states and underwent an adaptation exercise (AE) which consisted of listening to recordings of patients discussing how they adapted to RA. Also included was a structured discussion to encourage the participant to reflect on how the patients have adapted. Participants were shown their own health state values, as well as patient values. Findings: After being informed about disease adaptation and reflecting on the information, participants were more likely to consider adaptation and alter their opinions of RA if they were able to empathise with the patients in the AE. This enabled individuals to feel that they could cope by reflecting on their experience of RA in family and friends, by drawing on others for support if they had RA, and by having a positive attitude towards life. Conclusions: The results demonstrate that there is a range of reasons for which people change their perceptions about RA; this requires further exploration.
Download InfoIf you experience problems downloading a file, check if you have the proper application to view it first. In case of further problems read the IDEAS help page. Note that these files are not on the IDEAS site. Please be patient as the files may be large.
Bibliographic InfoPaper provided by University Library of Munich, Germany in its series MPRA Paper with number 29836.
Date of creation: 2009
Date of revision:
health state valuation; qualitative research; quality of life; disease adaptation;
Find related papers by JEL classification:
- I31 - Health, Education, and Welfare - - Welfare and Poverty - - - General Welfare
- I19 - Health, Education, and Welfare - - Health - - - Other
Please report citation or reference errors to , or , if you are the registered author of the cited work, log in to your RePEc Author Service profile, click on "citations" and make appropriate adjustments.:
- John Brazier & Ron Akehurst & Alan Brennan & Paul Dolan & Karl Claxton & Chris McCabe & Mark Sculpher & Aki Tsuchyia, 2005. "Should Patients Have a Greater Role in Valuing Health States?," Applied Health Economics and Health Policy, Springer Healthcare | Adis, vol. 4(4), pages 201-208.
- Menzel, Paul & Dolan, Paul & Richardson, Jeff & Olsen, Jan Abel, 2002. "The role of adaptation to disability and disease in health state valuation: a preliminary normative analysis," Social Science & Medicine, Elsevier, vol. 55(12), pages 2149-2158, December.
- McTaggart-Cowan, H & Brazier, J & Tsuchiya, A, 2008. "Combining Rasch and cluster analysis: a novel method for developing rheumatoid arthritis states for use in valuation studies," MPRA Paper 29834, University Library of Munich, Germany.
- Damschroder, Laura J. & Zikmund-Fisher, Brian J. & Ubel, Peter A., 2005. "The impact of considering adaptation in health state valuation," Social Science & Medicine, Elsevier, vol. 61(2), pages 267-277, July.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (Ekkehart Schlicht).
If references are entirely missing, you can add them using this form.