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How Can Contingent Valuation Inform the Bioethics Debate? Evidence from a Survey on Hereditary Cancers in France

Author

Listed:
  • Christel Protière
  • Olivier Chanel

    (GREQAM - Groupement de Recherche en Économie Quantitative d'Aix-Marseille - EHESS - École des hautes études en sciences sociales - AMU - Aix Marseille Université - ECM - École Centrale de Marseille - CNRS - Centre National de la Recherche Scientifique)

  • Emmanuelle Mouret-Fourme

    (Hôpital René Huguenin [Saint-Cloud] - ICSC - Institut Curie - Saint Cloud)

  • Claire Julian-Reynier

    (SESSTIM - U912 INSERM - Aix Marseille Univ - IRD - Sciences Economiques et Sociales de la Santé & Traitement de l'Information Médicale - IRD - Institut de Recherche pour le Développement - AMU - Aix Marseille Université - INSERM - Institut National de la Santé et de la Recherche Médicale)

  • Catherine Noguès

    (Hôpital René Huguenin [Saint-Cloud] - ICSC - Institut Curie - Saint Cloud)

  • Isabelle Coupier

    (Unité d'Oncogénétique - CRLCC Val d'Aurelle - Paul Lamarque, Service de génétique médicale [Montpellier] - CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier] - Hôpital Arnaud de Villeneuve [CHRU Montpellier] - CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier])

Abstract

BRCA1/2 carriers have a higher risk of developing breast and ovarian cancer at a younger age. Preimplantation genetic diagnosis (PGD) and prenatal diagnosis (PND) are two of the few options available to avoid transmitting the mutation. To inform the bioethics debate about authorization, a contingent valuation survey elicited preferences regarding access to PGD and PND from a sample of 460 unaffected by cancer BRCA1/2 carriers (GENEPSO cohort). We find that the respondents can be classified into three groups: one opposed to PGD/PND (28.3%), one strongly in favour of PGD/PND (45.8%), and one in an intermediate position (25.9%). We look for the determinants of these preferences, especially of the willingness to pay for PGD/PND. Overall, we find that BRCA1/2 carriers support access to PGD/PND, which has implications for recommendations to decision-makers.

Suggested Citation

  • Christel Protière & Olivier Chanel & Emmanuelle Mouret-Fourme & Claire Julian-Reynier & Catherine Noguès & Isabelle Coupier, 2017. "How Can Contingent Valuation Inform the Bioethics Debate? Evidence from a Survey on Hereditary Cancers in France," Post-Print hal-01589998, HAL.
    • Handle: RePEc:hal:journl:hal-01589998
    DOI: 10.3917/reco.683.0379
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    Keywords

    Economie quantitative;

    JEL classification:

    • C01 - Mathematical and Quantitative Methods - - General - - - Econometrics
    • C83 - Mathematical and Quantitative Methods - - Data Collection and Data Estimation Methodology; Computer Programs - - - Survey Methods; Sampling Methods
    • D04 - Microeconomics - - General - - - Microeconomic Policy: Formulation; Implementation; Evaluation
    • D79 - Microeconomics - - Analysis of Collective Decision-Making - - - Other
    • I19 - Health, Education, and Welfare - - Health - - - Other

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