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Consenting to health record linkage: evidence from the British Household Panel Study

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  • Burton, Jonathan
  • Sala, Emanuela
  • Knies, Gundi

Abstract

The British Household Panel Survey (BHPS) is the first study of its kind to have asked for permission to link to a range of administrative health records. Multivariate analysis is applied to investigate whether there is consent bias. We find that consent on the BHPS is not biased with respect to socio-economic characteristics or health; recent users of GP services are underrepresented among consenters. Whilst consent rates are lower than on previous surveys with a more medical focus, the problem of bias is less of an issue.

Suggested Citation

  • Burton, Jonathan & Sala, Emanuela & Knies, Gundi, 2011. "Consenting to health record linkage: evidence from the British Household Panel Study," ISER Working Paper Series 2011-27, Institute for Social and Economic Research.
    • Handle: RePEc:ese:iserwp:2011-27
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    File URL: https://www.iser.essex.ac.uk/wp-content/uploads/files/working-papers/iser/2011-27.pdf
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    1. Emanuela Sala & Jonathan Burton & Gundi Knies, 2012. "Correlates of Obtaining Informed Consent to Data Linkage," Sociological Methods & Research, , vol. 41(3), pages 414-439, August.
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    Cited by:

    1. Sala, Emanuela & Knies, Gundi & Burton, Jonathan, 2013. "Propensity to consent to data linkage: experimental evidence from the Innovation Panel on the role of three survey design features," Understanding Society Working Paper Series 2013-05, Understanding Society at the Institute for Social and Economic Research.
    2. Al Baghal, Tarek & Knies, Gundi & Burton, Jonathan, 2014. "Linking administrative records to surveys: differences in the correlates to consent decisions," Understanding Society Working Paper Series 2014-09, Understanding Society at the Institute for Social and Economic Research.

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