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The entanglement of scientific and political claims:towards a new form of patients’ activism

Author

Listed:
  • Madeleine Akrich

    (Centre de Sociologie de l'Innovation, Mines ParisTech)

  • Orla O'Donovan

    (Department of Applied Social Studies, University College Cork)

  • Vololona Rabeharisoa

    (Centre de Sociologie de l'Innovation, Mines ParisTech)

Abstract

The article documents and analyzes patients organizations- and groups of activists’ “evidence-based activism†, and the compound dynamic interplay between politics of illness and politics of knowledge it entails in the four condition areas studied: ADHD, Alzheimer, rare diseases and childbirth.

Suggested Citation

  • Madeleine Akrich & Orla O'Donovan & Vololona Rabeharisoa, 2013. "The entanglement of scientific and political claims:towards a new form of patients’ activism," CSI Working Papers Series 035, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    • Handle: RePEc:emn:wpaper:035
    as

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    File URL: http://www.csi.mines-paristech.fr/working-papers/DLWP.php?wp=WP_CSI_035.pdf
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    References listed on IDEAS

    as
    1. Madeleine Akrich, 2010. "From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet," Sociological Research Online, , vol. 15(2), pages 116-132, May.
    2. Madeleine Akrich & Maire Leane & Celia Roberts & João Arriscado Nunes, 2012. "Practising childbirth activism: a politics of evidence," CSI Working Papers Series 023, Centre de Sociologie de l'Innovation (CSI), Mines ParisTech.
    Full references (including those not matched with items on IDEAS)

    Citations

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    Cited by:

    1. Kuchinskaya, Olga & Parker, Lisa S., 2018. "‘Recurrent losers unite’: Online forums, evidence-based activism, and pregnancy loss," Social Science & Medicine, Elsevier, vol. 216(C), pages 74-80.

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    More about this item

    Keywords

    patient organizations; health activism; evidence-based activism; healthcare policy;
    All these keywords.

    JEL classification:

    • I18 - Health, Education, and Welfare - - Health - - - Government Policy; Regulation; Public Health
    • Z18 - Other Special Topics - - Cultural Economics - - - Public Policy

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