IDEAS home Printed from https://ideas.repec.org/a/taf/japsta/v39y2012i4p711-721.html
   My bibliography  Save this article

Modeling delay in diagnosis of NF: under reportincg, incidence and prevalence estimates

Author

Listed:
  • Irene Rocchetti
  • Domenica Taruscio
  • Marco Alfò

Abstract

In this paper, we analyze data from the Italian National Register of Rare Diseases (NRRD) focusing, in particular, on the geo-temporal distribution of patients affected by neurofibromatosis type 1 (NF1, ICD9CM code 237.71). The aim is at deriving a corrected measure of incidence for the period 2007--2009 using a single source, and to provide NF1 prevalence estimates for the period 2001--2006 through the use of capture--recapture methods over two sources. In the first case, a reverse hazard estimator for the delay in diagnosis of NF1 is used to estimate the probability that a generic unit belonging to the population of interest has been registered by the archive of reference. For the second purpose, two-source capture--recapture methods have been used to estimate the number of NF1 prevalent units in Italy for the period 2001--2006, matching information provided by the NRRD and the national register of hospital discharge, Scheda di Dimissione Ospedaliera (in the following SDO), archives.

Suggested Citation

  • Irene Rocchetti & Domenica Taruscio & Marco Alfò, 2012. "Modeling delay in diagnosis of NF: under reportincg, incidence and prevalence estimates," Journal of Applied Statistics, Taylor & Francis Journals, vol. 39(4), pages 711-721, August.
    • Handle: RePEc:taf:japsta:v:39:y:2012:i:4:p:711-721
    DOI: 10.1080/02664763.2011.610446
    as

    Download full text from publisher

    File URL: http://hdl.handle.net/10.1080/02664763.2011.610446
    Download Restriction: Access to full text is restricted to subscribers.
    File URL: https://libkey.io/10.1080/02664763.2011.610446?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:taf:japsta:v:39:y:2012:i:4:p:711-721. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Chris Longhurst (email available below). General contact details of provider: http://www.tandfonline.com/CJAS20 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.