But Women Can't Have 'Hemophilia'!: A Look at the Lives of Women with Bleeding Disorder
AbstractMost of the literature about hemophilia has been from a medical perspective and about men. This on-going project has been to document the lives and 'voices' of women who have a bleeding disorder, their experiences with the medical community, and the course of their diagnosis and treatment. The women in this study were predominantly Caucasian (92%), were currently married (66.7%), had (68.9%), and of those women who had children, the majority of their children (67.9%), both boys and girls, as well as other family members (63.3%) had some type of bleeding disorder. Findings revealed there was on average, a 14 year gap between the first bleeding episode and the diagnosis of a bleeding disorder. Women reported long, heavy menstrual cycles and having consulted a physician for menstrual bleeding as teenagers. Treatments for menstrual bleeding included D and C's (42.9%) and hysterectomies (34.5%), while referrals to Hemophilia Treatment Centers for a consultation were rare.
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Bibliographic InfoArticle provided by Sociological Research Online in its journal Sociological Research Online.
Volume (Year): 3 (1998)
Issue (Month): 4 ()
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Gynecological Surgery; Hemophilia; Menorrhagia; Von Willebrand Disease; Women;
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