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Understanding and Assessing the Impact of End-Stage Renal Disease on Quality of Life

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  • Cheryl Glover
  • Pauline Banks
  • Amanda Carson
  • Colin Martin
  • Tim Duffy

Abstract

Advances in healthcare, combined with an increasing number of adults with end-stage renal disease (ESRD), mean that there is a growing number of people now surviving on renal replacement therapy. The issue of health-related quality of life (HR-QOL) is becoming increasingly important in this area. For this reason, the content validity of various instruments used to measure HR-QOL in an ESRD population were explored. Systematic searches of MEDLINE (1950–2009) were conducted using terms related to ESRD combined with terms associated with measuring HR-QOL. A total of 378 abstracts were identified, detailing the repeated use of six generic measures and four disease-specific measures. The generic HR-QOL measures discussed include the Medical Outcomes 36-Item Short Form Survey (SF-36), the EuroQOL 5 Dimension (EQ-5D), and the WHO QOL assessment (WHOQOL-BREF). The most frequently used disease-specific measure discussed is the Kidney Disease QOL instrument (KDQOL) and its derivative versions (KDQOL-SF, KDQOL-36). The appropriateness of using the SF-36 in this population is challenged and recommendations include using the WHOQOL-BREF in cases when a generic instrument is required and the KDQOL-SF when a more disease-specific measurement is called for. Copyright Adis Data Information BV 2011

Suggested Citation

  • Cheryl Glover & Pauline Banks & Amanda Carson & Colin Martin & Tim Duffy, 2011. "Understanding and Assessing the Impact of End-Stage Renal Disease on Quality of Life," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 4(1), pages 19-30, January.
    • Handle: RePEc:spr:patien:v:4:y:2011:i:1:p:19-30
    DOI: 10.2165/11584650-000000000-00000
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    1. Anonymous, 1948. "World Health Organization," International Organization, Cambridge University Press, vol. 2(2), pages 374-377, June.
    2. Anonymous, 1948. "World Health Organization," International Organization, Cambridge University Press, vol. 2(1), pages 138-140, February.
    3. Eric B. Bass & Mollie W. Jenckes & Nancy E. Fink & Kate A. Cagney & Albert W. Wu & John H. Sadler & Klemens B. Meyer & Andrews. Levey & Neil R. Powe, 1999. "Use of Focus Groups to Identify Concerns about Dialysis," Medical Decision Making, , vol. 19(3), pages 287-295, August.
    4. Anonymous, 1948. "World Health Organization," International Organization, Cambridge University Press, vol. 2(3), pages 540-542, September.
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    1. Thi Loan Dang & Fu-Chih Lai & Yen-Kuang Lin & Kuei-Ru Chou & Nae-Fang Miao & Yuan-Mei Liao, 2018. "Psychometric Evaluation of the Vietnamese Hemodialysis Stressor Scale," Clinical Nursing Research, , vol. 27(3), pages 364-385, March.

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