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The social dynamics of consent and refusal in HIV surveillance in rural South Africa

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  • Reynolds, Lindsey
  • Cousins, Thomas
  • Newell, Marie-Louise
  • Imrie, John

Abstract

In the context of low rates of participation in a prospective, population-based HIV surveillance programme, researchers at a surveillance site in rural KwaZulu-Natal, South Africa, conducted an operational study from January 2009 to February 2010, with the aim of improving participation rates, particularly in the provision of dried blood spots for the surveillance. Findings suggest, firstly, that consent to participation in the HIV surveillance is informed by the dynamics of relationality in the HIV surveillance “consent encounter.”

Suggested Citation

  • Reynolds, Lindsey & Cousins, Thomas & Newell, Marie-Louise & Imrie, John, 2013. "The social dynamics of consent and refusal in HIV surveillance in rural South Africa," Social Science & Medicine, Elsevier, vol. 77(C), pages 118-125.
    • Handle: RePEc:eee:socmed:v:77:y:2013:i:c:p:118-125
    DOI: 10.1016/j.socscimed.2012.11.015
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    References listed on IDEAS

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    1. Molyneux, Sassy & Geissler, P. Wenzel, 2008. "Ethics and the ethnography of medical research in Africa," Social Science & Medicine, Elsevier, vol. 67(5), pages 685-695, September.
    2. Geissler, P. Wenzel & Kelly, Ann & Imoukhuede, Babatunde & Pool, Robert, 2008. "'He is now like a brother, I can even give him some blood' - Relational ethics and material exchanges in a malaria vaccine 'trial community' in The Gambia," Social Science & Medicine, Elsevier, vol. 67(5), pages 696-707, September.
    3. Fairhead, James & Leach, Melissa & Small, Mary, 2006. "Where techno-science meets poverty: Medical research and the economy of blood in The Gambia, West Africa," Social Science & Medicine, Elsevier, vol. 63(4), pages 1109-1120, August.
    4. Anne Case & Cally Ardington, 2006. "The impact of parental death on school outcomes: Longitudinal evidence from South Africa," Demography, Springer;Population Association of America (PAA), vol. 43(3), pages 401-420, August.
    5. Gikonyo, Caroline & Bejon, Philip & Marsh, Vicki & Molyneux, Sassy, 2008. "Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast," Social Science & Medicine, Elsevier, vol. 67(5), pages 708-720, September.
    6. Christopher Colvin & Steven Robins & Joan Leavens, 2010. "Grounding 'Responsibilisation Talk': Masculinities, Citizenship and HIV in Cape Town, South Africa," Journal of Development Studies, Taylor & Francis Journals, vol. 46(7), pages 1179-1195.
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    Cited by:

    1. Kim, Eun-Sung & Chung, Ji-Bum, 2021. "Korean mothers’ morality in the wake of COVID-19 contact-tracing surveillance," Social Science & Medicine, Elsevier, vol. 270(C).

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