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Gendered embodiment and survival for young people with cystic fibrosis

Author

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  • Willis, Evan
  • Miller, Rosemary
  • Wyn, Johanna

Abstract

In the context of improvements in both longevity and the quality of life for people with chronic disease, this paper takes as its sense of problem the differential life expectancy for young men as against young women suffering from cystic fibrosis. From a qualitative study of the transition to adulthood for young people with the disease, a theory of gendered embodiment is proposed to explain this differential. The social construction of masculinity and femininity as social practices resulted in the former being more conducive to survival than the latter in this case. There were marked differences between the young women and young men in attitudes to: the meaning of life, death, career and body image; all of which affected adherence to medical regimen.

Suggested Citation

  • Willis, Evan & Miller, Rosemary & Wyn, Johanna, 2001. "Gendered embodiment and survival for young people with cystic fibrosis," Social Science & Medicine, Elsevier, vol. 53(9), pages 1163-1174, November.
    • Handle: RePEc:eee:socmed:v:53:y:2001:i:9:p:1163-1174
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    Citations

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    Cited by:

    1. Allen, Kerry, 2011. "Managing Prader-Willi syndrome in families: An embodied exploration," Social Science & Medicine, Elsevier, vol. 72(4), pages 460-468, February.
    2. Alexandra C.H. Nowakowski, 2019. "The Salt without the Girl: Negotiating Embodied Identity as an Agender Person with Cystic Fibrosis," Social Sciences, MDPI, vol. 8(3), pages 1-18, March.
    3. Alexandra Valencia-Peris & Jorge Lizandra & Irene Moya-Mata & Fernando Gómez-Gonzalvo & Silvia Castillo-Corullón & Amparo Escribano, 2021. "Comparison of Physical Activity and Sedentary Behaviour between Schoolchildren with Cystic Fibrosis and Healthy Controls: A Gender Analysis," IJERPH, MDPI, vol. 18(10), pages 1-12, May.
    4. Williams, Brian & Mukhopadhyay, Somnath & Dowell, Jon & Coyle, Joanne, 2007. "From child to adult: An exploration of shifting family roles and responsibilities in managing physiotherapy for cystic fibrosis," Social Science & Medicine, Elsevier, vol. 65(10), pages 2135-2146, November.
    5. Odoms-Young, Angela, 2008. "Factors that influence body image representations of black Muslim women," Social Science & Medicine, Elsevier, vol. 66(12), pages 2573-2584, June.
    6. Jordan-Young, Rebecca M., 2012. "Hormones, context, and “Brain Gender”: A review of evidence from congenital adrenal hyperplasia," Social Science & Medicine, Elsevier, vol. 74(11), pages 1738-1744.

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