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Research performance of centers of expertise for rare diseases—The influence of network integration, internal resource access and operational experience

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  • Hannemann-Weber, Henrike
  • Kessel, Maura
  • Schultz, Carsten
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    Abstract

    Centers of expertise (CoE) are vital to the care and treatment of patients with rare diseases and play a central role in generating medical and scientific knowledge. This study explores the relationship between a CoEs internal resource availability, operational experience and functional network integration and its research performance.

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    File URL: http://www.sciencedirect.com/science/article/pii/S0168851012000358
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    Bibliographic Info

    Article provided by Elsevier in its journal Health Policy.

    Volume (Year): 105 (2012)
    Issue (Month): 2 ()
    Pages: 138-145

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    Handle: RePEc:eee:hepoli:v:105:y:2012:i:2:p:138-145

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    Web page: http://www.elsevier.com/locate/healthpol

    Related research

    Keywords: Cooperation; Center of expertise; Healthcare; Network integration; Operational experience; Rare disease; Research performance;

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    1. Teece, David J., 1993. "Profiting from technological innovation: Implications for integration, collaboration, licensing and public policy," Research Policy, Elsevier, vol. 22(2), pages 112-113, April.
    2. Mur-Veeman, Ingrid & Hardy, Brian & Steenbergen, Marijke & Wistow, Gerald, 2003. "Development of integrated care in England and the Netherlands: Managing across public-private boundaries," Health Policy, Elsevier, vol. 65(3), pages 227-241, September.
    3. Moed, H. F. & Burger, W. J. M. & Frankfort, J. G. & Van Raan, A. F. J., 1985. "The use of bibliometric data for the measurement of university research performance," Research Policy, Elsevier, vol. 14(3), pages 131-149, June.
    4. Hagedoorn, John & Schakenraad, Jos, 1992. "Leading companies and networks of strategic alliances in information technologies," Research Policy, Elsevier, vol. 21(2), pages 163-190, April.
    5. Nickel, Stefan & Thiedemann, Birgit & von dem Knesebeck, Olaf, 2010. "The effects of integrated inpatient health care on patient satisfaction and health-related quality of life: Results of a survey among heart disease patients in Germany," Health Policy, Elsevier, vol. 98(2-3), pages 156-163, December.
    6. van Wijngaarden, Jeroen D.H. & de Bont, Antoinette A. & Huijsman, Robbert, 2006. "Learning to cross boundaries: The integration of a health network to deliver seamless care," Health Policy, Elsevier, vol. 79(2-3), pages 203-213, December.
    7. Atul Nerkar, 2003. "Old Is Gold? The Value of Temporal Exploration in the Creation of New Knowledge," Management Science, INFORMS, vol. 49(2), pages 211-229, February.
    8. Fattore, Giovanni & Frosini, Francesca & Salvatore, Domenico & Tozzi, Valeria, 2009. "Social network analysis in primary care: The impact of interactions on prescribing behaviour," Health Policy, Elsevier, vol. 92(2-3), pages 141-148, October.
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